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- W4291361278 abstract "Background Although people living with CF (PLwCF) commonly report pain and other symptoms, little is known regarding their experiences of living with and accessing treatment for burdensome symptoms. Methods PLwCF completed online questionnaires assessing symptom prevalence and distress and were also asked about experiences accessing pain and symptom treatment, using both closed-ended and free-text entries. Results Pain was the most prevalent symptom experienced among the 55 participants (76%) and the symptom that most commonly caused distress (64%). PLwCF not on CFTR modulator therapy were likelier to endorse pain as distressing (p = 0.007). Respondents expressed that their pain was commonly underrecognized and undermanaged, they desired a multi-modal approach to treatment, and noted concerns about disease progression affecting their symptom management options. Conclusions Our study suggests that PLwCF often have unmet symptom management needs that may impair quality of life." @default.
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- W4291361278 date "2023-03-01" @default.
- W4291361278 modified "2023-10-16" @default.
- W4291361278 title "Prevalence of unmet pain and symptom management needs in adults with cystic fibrosis" @default.
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- W4291361278 doi "https://doi.org/10.1016/j.jcf.2022.08.006" @default.
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