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- W4297499098 abstract "PurposeThe purpose of the present study was to explore cancer specialist nurses' experiences of supporting family members of persons diagnosed with colorectal cancer.MethodThe study was designed as a qualitative study. Data was collected using individual semi-structured telephone interviews with 21 cancer specialist nurses. The interviews were transcribed and analysed with reflexive thematic analysis.ResultsThe analysis generated one overarching theme, In the shadow of the person diagnosed with colorectal cancer, and four themes: striving for confidence, searching for ways to support, seeking individualization, and balancing between needs. Swedish colorectal cancer care is organized with the persons diagnosed with colorectal cancer as the centre of care and lacks both structure and allocated resources for supportive care for family members. Thus, support for family members has to be provided within the existing colorectal cancer care. The support provided focuses mainly on strengthening the family members' ability in the caregiving role and is offered primarily at the time of diagnosis.ConclusionThere is an apparent need for developing supportive care plans for family members, involving repeated assessments of multidimensional needs, a tailored support, and follow-ups. Accordingly, a re-evaluation of the cancer specialist nurse's role is needed so that key nursing responsibilities are not ranked second to administrative tasks." @default.
- W4297499098 created "2022-09-29" @default.
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- W4297499098 date "2022-12-01" @default.
- W4297499098 modified "2023-10-17" @default.
- W4297499098 title "Cancer specialist nurses' experiences of supporting family members of persons diagnosed with colorectal cancer: A qualitative study" @default.
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- W4297499098 doi "https://doi.org/10.1016/j.ejon.2022.102205" @default.
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