FRINK Linked Data Fragments server

Matches in SemOpenAlex for { <https://semopenalex.org/work/W4309456543> ?p ?o ?g. }

• W4309456543 endingPage "1922" @default.
• W4309456543 startingPage "1922" @default.
• W4309456543 abstract "Background: Real-world data (RWD) privacy is an increasingly complex topic within the scope of personalized medicine, as it implicates several sources of data. Objective: To assess how privacy-related experiences, when adjusted for age and education level, may shape adult research participants’ willingness to share various sources of real-world data with researchers. Methods: An electronic survey was conducted in April 2021 among adults (≥18 years of age) registered in ResearchMatch, a national health research registry. Descriptive analyses were conducted to assess survey participant demographics. Logistic regression was conducted to assess the association between participants’ five distinct privacy-related experiences and their willingness to share each of the 19 data sources with researchers, adjusting for education level and age range. Results: A total of 598 ResearchMatch adults were contacted and 402 completed the survey. Most respondents were over the age of 51 years (49% total) and held a master’s or bachelor’s degree (63% total). Over half of participants (54%) had their account accessed by someone without their permission. Almost half of participants (49%) reported the privacy of their personal information being violated. Analyses showed that, when adjusted for age range and education level, participants whose reputations were negatively affected as a result of information posted online were more likely to share electronic medical record data (OR = 2.074, 95% CI: 0.986–4.364) and genetic data (OR = 2.302, 95% CI: 0.894–5.93) versus those without this experience. Among participants who had an unpleasant experience as a result of giving out information online, those with some college/associates/trade school compared to those with a doctoral or other terminal degree were significantly more willing to share genetic data (OR = 1.064, 95% CI: 0.396–2.857). Across all privacy-related experiences, participants aged 18 to 30 were significantly more likely than those over 60 years to share music streaming data, ridesharing history data, and voting history data. Additionally, across all privacy-related experiences, those with a high school education were significantly more likely than those with a doctorate or other terminal degree to share credit card statement data. Conclusions: This study offers the first insights into how privacy-related experiences, adjusted for age range and education level, may shape ResearchMatch participants’ willingness to share several sources of real-world data sources with precision medicine researchers. Future work should further explore these insights." @default.
• W4309456543 created "2022-11-28" @default.
• W4309456543 creator A5005759906 @default.
• W4309456543 creator A5030908494 @default.
• W4309456543 creator A5074201205 @default.
• W4309456543 date "2022-11-17" @default.
• W4309456543 modified "2023-09-25" @default.
• W4309456543 title "A Survey of Research Participants’ Privacy-Related Experiences and Willingness to Share Real-World Data with Researchers" @default.
• W4309456543 cites W2006213980 @default.
• W4309456543 cites W2007486119 @default.
• W4309456543 cites W2063311193 @default.
• W4309456543 cites W2083734720 @default.
• W4309456543 cites W2139585684 @default.
• W4309456543 cites W2143062300 @default.
• W4309456543 cites W2804649465 @default.
• W4309456543 cites W2834151218 @default.
• W4309456543 cites W2902809085 @default.
• W4309456543 cites W2903777941 @default.
• W4309456543 cites W2906039625 @default.
• W4309456543 cites W2939414526 @default.
• W4309456543 cites W2944572066 @default.
• W4309456543 cites W2956449337 @default.
• W4309456543 cites W2965323397 @default.
• W4309456543 cites W2969107720 @default.
• W4309456543 cites W2997525229 @default.
• W4309456543 cites W3000472295 @default.
• W4309456543 cites W3014903360 @default.
• W4309456543 cites W3038865079 @default.
• W4309456543 cites W3041558614 @default.
• W4309456543 cites W3047747926 @default.
• W4309456543 cites W3093542778 @default.
• W4309456543 cites W3095908324 @default.
• W4309456543 cites W3096733916 @default.
• W4309456543 cites W3161681933 @default.
• W4309456543 cites W4210923757 @default.
• W4309456543 cites W4224325815 @default.
• W4309456543 cites W4283212791 @default.
• W4309456543 doi "https://doi.org/10.3390/jpm12111922" @default.
• W4309456543 hasPubMedId "https://pubmed.ncbi.nlm.nih.gov/36422098" @default.
• W4309456543 hasPublicationYear "2022" @default.
• W4309456543 type Work @default.
• W4309456543 citedByCount "2" @default.
• W4309456543 countsByYear W43094565432023 @default.
• W4309456543 crossrefType "journal-article" @default.
• W4309456543 hasAuthorship W4309456543A5005759906 @default.
• W4309456543 hasAuthorship W4309456543A5030908494 @default.
• W4309456543 hasAuthorship W4309456543A5074201205 @default.
• W4309456543 hasBestOaLocation W43094565431 @default.
• W4309456543 hasConcept C105795698 @default.
• W4309456543 hasConcept C126322002 @default.
• W4309456543 hasConcept C144024400 @default.
• W4309456543 hasConcept C149923435 @default.
• W4309456543 hasConcept C151956035 @default.
• W4309456543 hasConcept C15744967 @default.
• W4309456543 hasConcept C159110408 @default.
• W4309456543 hasConcept C160735492 @default.
• W4309456543 hasConcept C162324750 @default.
• W4309456543 hasConcept C166957645 @default.
• W4309456543 hasConcept C169093310 @default.
• W4309456543 hasConcept C205649164 @default.
• W4309456543 hasConcept C2776154706 @default.
• W4309456543 hasConcept C2777626052 @default.
• W4309456543 hasConcept C2780084366 @default.
• W4309456543 hasConcept C2982795734 @default.
• W4309456543 hasConcept C2993868924 @default.
• W4309456543 hasConcept C33923547 @default.
• W4309456543 hasConcept C38652104 @default.
• W4309456543 hasConcept C39896193 @default.
• W4309456543 hasConcept C41008148 @default.
• W4309456543 hasConcept C50522688 @default.
• W4309456543 hasConcept C512399662 @default.
• W4309456543 hasConcept C71924100 @default.
• W4309456543 hasConceptScore W4309456543C105795698 @default.
• W4309456543 hasConceptScore W4309456543C126322002 @default.
• W4309456543 hasConceptScore W4309456543C144024400 @default.
• W4309456543 hasConceptScore W4309456543C149923435 @default.
• W4309456543 hasConceptScore W4309456543C151956035 @default.
• W4309456543 hasConceptScore W4309456543C15744967 @default.
• W4309456543 hasConceptScore W4309456543C159110408 @default.
• W4309456543 hasConceptScore W4309456543C160735492 @default.
• W4309456543 hasConceptScore W4309456543C162324750 @default.
• W4309456543 hasConceptScore W4309456543C166957645 @default.
• W4309456543 hasConceptScore W4309456543C169093310 @default.
• W4309456543 hasConceptScore W4309456543C205649164 @default.
• W4309456543 hasConceptScore W4309456543C2776154706 @default.
• W4309456543 hasConceptScore W4309456543C2777626052 @default.
• W4309456543 hasConceptScore W4309456543C2780084366 @default.
• W4309456543 hasConceptScore W4309456543C2982795734 @default.
• W4309456543 hasConceptScore W4309456543C2993868924 @default.
• W4309456543 hasConceptScore W4309456543C33923547 @default.
• W4309456543 hasConceptScore W4309456543C38652104 @default.
• W4309456543 hasConceptScore W4309456543C39896193 @default.
• W4309456543 hasConceptScore W4309456543C41008148 @default.
• W4309456543 hasConceptScore W4309456543C50522688 @default.
• W4309456543 hasConceptScore W4309456543C512399662 @default.
• W4309456543 hasConceptScore W4309456543C71924100 @default.
• W4309456543 hasIssue "11" @default.
• W4309456543 hasLocation W43094565431 @default.

• next