FRINK Linked Data Fragments server

Matches in SemOpenAlex for { <https://semopenalex.org/work/W4309566292> ?p ?o ?g. }

• W4309566292 endingPage "104419" @default.
• W4309566292 startingPage "104419" @default.
• W4309566292 abstract "BackgroundPeople with MS (PwMS) can experience a number of diverse needs which may be met by community-based services such as those delivered by MS Ireland (MSI), where Community Workers (CWs) provide support to PwMS on an individualised basis. However, while such support may be critical in helping PwMS adapt and cope with the challenges of living with MS, there has been little evaluation of the outcomes and impacts of this service to date. This study aimed to explore the perceived effectiveness and impacts of community work from the perspectives of both PwMS and CWs.MethodsUsing stakeholder engagement and public and patient involvement (PPI), two surveys were developed for (1) CWs, and (2) services users of MSI. A series of open and closed questions centred on the effectiveness of community work in meeting twelve distinct categories of needs taken from an adapted framework of rehabilitation and healthcare needs of PwMS. Both CWs and service users rated the extent to which these various needs were met through community work, as well as describing the mechanisms by which needs were met, and the challenges faced in meeting these needs. Separately, both groups described the perceived impacts of community work using open-text responses.ResultsFifteen CWs and 367 PwMS, 269 (73%) of whom knew their CW, participated. Both groups rated community work positively in meeting the needs for information, emotional/psychological support and coordination of care, with lower perceived capacity for community work to meet needs for employment accommodations, caregiver support and homecare. Mann Whitney U tests did not find any significant difference between groups in the perceived capacity of community work to meet the various needs examined (p>.05). Core mechanisms by which CWs meet needs are by signposting to relevant services, listening, and facilitating peer support. Difficulty accessing external services was the primary challenge identified in meeting needs. Positive impacts of community work included the role that CWs play in fostering confidence and acceptance of MS, and in helping service users overcome the challenges of MS.ConclusionResults suggest how CWs can help meet the needs of PwMS, while also highlighting the numerous positive impacts that community work has for this group. While it is clear that a number of unmet needs may remain due to a lack of access to other external services, this study shows how community-based services may play an important role in helping PwMS adapt to living with MS." @default.
• W4309566292 created "2022-11-28" @default.
• W4309566292 creator A5003549312 @default.
• W4309566292 creator A5048356032 @default.
• W4309566292 creator A5048822022 @default.
• W4309566292 creator A5050482263 @default.
• W4309566292 creator A5066632667 @default.
• W4309566292 date "2023-01-01" @default.
• W4309566292 modified "2023-10-01" @default.
• W4309566292 title "An evaluation of the role of community care in meeting the needs of people with multiple sclerosis in Ireland" @default.
• W4309566292 cites W1973836236 @default.
• W4309566292 cites W2008576914 @default.
• W4309566292 cites W2025556060 @default.
• W4309566292 cites W2053568407 @default.
• W4309566292 cites W2077885248 @default.
• W4309566292 cites W2092587947 @default.
• W4309566292 cites W2100116912 @default.
• W4309566292 cites W2121848908 @default.
• W4309566292 cites W2165672252 @default.
• W4309566292 cites W2460510524 @default.
• W4309566292 cites W2553410079 @default.
• W4309566292 cites W2587788041 @default.
• W4309566292 cites W2770280018 @default.
• W4309566292 cites W2792934525 @default.
• W4309566292 cites W2895088894 @default.
• W4309566292 cites W2952671733 @default.
• W4309566292 cites W2958939935 @default.
• W4309566292 cites W2990934287 @default.
• W4309566292 cites W2998869585 @default.
• W4309566292 cites W3026763276 @default.
• W4309566292 cites W3044866728 @default.
• W4309566292 cites W3048285835 @default.
• W4309566292 cites W3082814008 @default.
• W4309566292 cites W3087200787 @default.
• W4309566292 cites W3099273656 @default.
• W4309566292 doi "https://doi.org/10.1016/j.msard.2022.104419" @default.
• W4309566292 hasPubMedId "https://pubmed.ncbi.nlm.nih.gov/36413916" @default.
• W4309566292 hasPublicationYear "2023" @default.
• W4309566292 type Work @default.
• W4309566292 citedByCount "0" @default.
• W4309566292 crossrefType "journal-article" @default.
• W4309566292 hasAuthorship W4309566292A5003549312 @default.
• W4309566292 hasAuthorship W4309566292A5048356032 @default.
• W4309566292 hasAuthorship W4309566292A5048822022 @default.
• W4309566292 hasAuthorship W4309566292A5050482263 @default.
• W4309566292 hasAuthorship W4309566292A5066632667 @default.
• W4309566292 hasBestOaLocation W43095662921 @default.
• W4309566292 hasConcept C127413603 @default.
• W4309566292 hasConcept C144024400 @default.
• W4309566292 hasConcept C144133560 @default.
• W4309566292 hasConcept C159110408 @default.
• W4309566292 hasConcept C162853370 @default.
• W4309566292 hasConcept C17744445 @default.
• W4309566292 hasConcept C1862650 @default.
• W4309566292 hasConcept C18762648 @default.
• W4309566292 hasConcept C201305675 @default.
• W4309566292 hasConcept C2778818304 @default.
• W4309566292 hasConcept C2780378061 @default.
• W4309566292 hasConcept C28718268 @default.
• W4309566292 hasConcept C36289849 @default.
• W4309566292 hasConcept C39549134 @default.
• W4309566292 hasConcept C71924100 @default.
• W4309566292 hasConcept C78519656 @default.
• W4309566292 hasConceptScore W4309566292C127413603 @default.
• W4309566292 hasConceptScore W4309566292C144024400 @default.
• W4309566292 hasConceptScore W4309566292C144133560 @default.
• W4309566292 hasConceptScore W4309566292C159110408 @default.
• W4309566292 hasConceptScore W4309566292C162853370 @default.
• W4309566292 hasConceptScore W4309566292C17744445 @default.
• W4309566292 hasConceptScore W4309566292C1862650 @default.
• W4309566292 hasConceptScore W4309566292C18762648 @default.
• W4309566292 hasConceptScore W4309566292C201305675 @default.
• W4309566292 hasConceptScore W4309566292C2778818304 @default.
• W4309566292 hasConceptScore W4309566292C2780378061 @default.
• W4309566292 hasConceptScore W4309566292C28718268 @default.
• W4309566292 hasConceptScore W4309566292C36289849 @default.
• W4309566292 hasConceptScore W4309566292C39549134 @default.
• W4309566292 hasConceptScore W4309566292C71924100 @default.
• W4309566292 hasConceptScore W4309566292C78519656 @default.
• W4309566292 hasFunder F4320321056 @default.
• W4309566292 hasLocation W43095662921 @default.
• W4309566292 hasLocation W43095662922 @default.
• W4309566292 hasLocation W43095662923 @default.
• W4309566292 hasOpenAccess W4309566292 @default.
• W4309566292 hasPrimaryLocation W43095662921 @default.
• W4309566292 hasRelatedWork W1036976350 @default.
• W4309566292 hasRelatedWork W1938178083 @default.
• W4309566292 hasRelatedWork W1978618611 @default.
• W4309566292 hasRelatedWork W2124480150 @default.
• W4309566292 hasRelatedWork W2313430876 @default.
• W4309566292 hasRelatedWork W2377163105 @default.
• W4309566292 hasRelatedWork W2735704371 @default.
• W4309566292 hasRelatedWork W3197761035 @default.
• W4309566292 hasRelatedWork W4320709474 @default.
• W4309566292 hasRelatedWork W651616694 @default.
• W4309566292 hasVolume "69" @default.
• W4309566292 isParatext "false" @default.
• W4309566292 isRetracted "false" @default.

• next