Matches in SemOpenAlex for { <https://semopenalex.org/work/W4317753410> ?p ?o ?g. }
Showing items 1 to 92 of
92
with 100 items per page.
- W4317753410 abstract "Abstract Background. Between the various number of different AIDs, the absolute majority remains to be rare, with a single representative among big populations. Project, endorsed by PRES and supported by the EMERGE fellowship program, performed in line with the Metadata registry for the ERN RITA (MeRITA), had an objective to perform data harmonization attempt of the most relevant research questions regarding clinical features, diagnostic strategy, and optimal management of the autoinflammatory diseases. Results. Analysis of 3 large European registries: Eurofever, JIR-cohort, and AID-Net with total coverage of 7825 patients from 278 participating centers all over the world was performed in the context of the epidemiological and clinical data merging. Information summarized in the registries covers not only pediatric patients, but as well adults, with newly diagnosed AID. General aspects of the existing epidemiological data were discussed in the context of patient distribution around the world, potential diagnostic delay, access to genetic testing, and availability of the treatment. Conclusions. Overall work results indicate great potential for upcoming collaborative work using existing data in cohorts, which will definitely benefit the quality of medical care performed for patients with autoinflammatory diseases." @default.
- W4317753410 created "2023-01-23" @default.
- W4317753410 creator A5015729254 @default.
- W4317753410 creator A5027564088 @default.
- W4317753410 creator A5036785123 @default.
- W4317753410 creator A5040230445 @default.
- W4317753410 creator A5055162371 @default.
- W4317753410 creator A5056522747 @default.
- W4317753410 creator A5057542301 @default.
- W4317753410 creator A5061338585 @default.
- W4317753410 creator A5065546602 @default.
- W4317753410 creator A5067354798 @default.
- W4317753410 creator A5068637996 @default.
- W4317753410 date "2023-01-23" @default.
- W4317753410 modified "2023-10-16" @default.
- W4317753410 title "Breaking down the fences among registries on Autoinflammatory diseases: the E-Merge project" @default.
- W4317753410 cites W1998366883 @default.
- W4317753410 cites W2012635350 @default.
- W4317753410 cites W2012883414 @default.
- W4317753410 cites W2092929307 @default.
- W4317753410 cites W2113187017 @default.
- W4317753410 cites W2121837801 @default.
- W4317753410 cites W2743415974 @default.
- W4317753410 cites W2759877698 @default.
- W4317753410 cites W2887009202 @default.
- W4317753410 cites W2913582647 @default.
- W4317753410 cites W3010019014 @default.
- W4317753410 cites W3010261260 @default.
- W4317753410 cites W3203774782 @default.
- W4317753410 doi "https://doi.org/10.21203/rs.3.rs-2483165/v1" @default.
- W4317753410 hasPublicationYear "2023" @default.
- W4317753410 type Work @default.
- W4317753410 citedByCount "0" @default.
- W4317753410 crossrefType "posted-content" @default.
- W4317753410 hasAuthorship W4317753410A5015729254 @default.
- W4317753410 hasAuthorship W4317753410A5027564088 @default.
- W4317753410 hasAuthorship W4317753410A5036785123 @default.
- W4317753410 hasAuthorship W4317753410A5040230445 @default.
- W4317753410 hasAuthorship W4317753410A5055162371 @default.
- W4317753410 hasAuthorship W4317753410A5056522747 @default.
- W4317753410 hasAuthorship W4317753410A5057542301 @default.
- W4317753410 hasAuthorship W4317753410A5061338585 @default.
- W4317753410 hasAuthorship W4317753410A5065546602 @default.
- W4317753410 hasAuthorship W4317753410A5067354798 @default.
- W4317753410 hasAuthorship W4317753410A5068637996 @default.
- W4317753410 hasBestOaLocation W43177534101 @default.
- W4317753410 hasConcept C107130276 @default.
- W4317753410 hasConcept C121332964 @default.
- W4317753410 hasConcept C142724271 @default.
- W4317753410 hasConcept C166957645 @default.
- W4317753410 hasConcept C197129107 @default.
- W4317753410 hasConcept C205649164 @default.
- W4317753410 hasConcept C23123220 @default.
- W4317753410 hasConcept C24890656 @default.
- W4317753410 hasConcept C2779343474 @default.
- W4317753410 hasConcept C2779962950 @default.
- W4317753410 hasConcept C41008148 @default.
- W4317753410 hasConcept C512399662 @default.
- W4317753410 hasConcept C545542383 @default.
- W4317753410 hasConcept C71924100 @default.
- W4317753410 hasConcept C72563966 @default.
- W4317753410 hasConceptScore W4317753410C107130276 @default.
- W4317753410 hasConceptScore W4317753410C121332964 @default.
- W4317753410 hasConceptScore W4317753410C142724271 @default.
- W4317753410 hasConceptScore W4317753410C166957645 @default.
- W4317753410 hasConceptScore W4317753410C197129107 @default.
- W4317753410 hasConceptScore W4317753410C205649164 @default.
- W4317753410 hasConceptScore W4317753410C23123220 @default.
- W4317753410 hasConceptScore W4317753410C24890656 @default.
- W4317753410 hasConceptScore W4317753410C2779343474 @default.
- W4317753410 hasConceptScore W4317753410C2779962950 @default.
- W4317753410 hasConceptScore W4317753410C41008148 @default.
- W4317753410 hasConceptScore W4317753410C512399662 @default.
- W4317753410 hasConceptScore W4317753410C545542383 @default.
- W4317753410 hasConceptScore W4317753410C71924100 @default.
- W4317753410 hasConceptScore W4317753410C72563966 @default.
- W4317753410 hasLocation W43177534101 @default.
- W4317753410 hasOpenAccess W4317753410 @default.
- W4317753410 hasPrimaryLocation W43177534101 @default.
- W4317753410 hasRelatedWork W2035682242 @default.
- W4317753410 hasRelatedWork W2071535500 @default.
- W4317753410 hasRelatedWork W2076975930 @default.
- W4317753410 hasRelatedWork W2101737224 @default.
- W4317753410 hasRelatedWork W2315085516 @default.
- W4317753410 hasRelatedWork W2316316929 @default.
- W4317753410 hasRelatedWork W2603773853 @default.
- W4317753410 hasRelatedWork W2952239533 @default.
- W4317753410 hasRelatedWork W2964295425 @default.
- W4317753410 hasRelatedWork W2999832097 @default.
- W4317753410 isParatext "false" @default.
- W4317753410 isRetracted "false" @default.
- W4317753410 workType "article" @default.