FRINK Linked Data Fragments server

Matches in SemOpenAlex for { <https://semopenalex.org/work/W4323921051> ?p ?o ?g. }

• W4323921051 endingPage "1053" @default.
• W4323921051 startingPage "1046" @default.
• W4323921051 abstract "Abstract Background Previous literature has explored parent/caregiver perspectives and satisfaction with the health care transition (HCT) process for their adolescents and young adults with special health care needs (AYASHCN). Limited research has explored the opinion of health care providers and researchers on parent/caregiver outcomes associated with a successful HCT for AYASHCN. Methods A web‐based survey was distributed through the international and interdisciplinary Health Care Transition Research Consortium listserv, which at the time of the survey was composed of 148 providers dedicated to optimizing the HCT of AYAHSCN. Participants responded to the open‐ended question, ‘What parent/caregiver‐related outcome(s) would represent a successful healthcare transition?’ Respondents included 109 providers (52 health care professionals, 38 social service professionals and 19 other). Responses were coded for emergent themes, and research suggestions were identified. Results Qualitative analyses identified two major themes: emotion‐ and behaviour‐based outcomes. Emotion‐based subthemes included relinquishing control of child's health management ( n = 50, 45.9%) as well as parental satisfaction and confidence in their child's care and HCT ( n = 42, 38.5%). Respondents also noted that parents/caregivers should experience an improved sense of well‐being and decreased stress ( n = 9, 8.2%) due to a successful HCT. Behaviour‐based outcomes included early preparation and planning for HCT ( n = 12, 11.0%) and parental instruction on the knowledge and skills necessary for their adolescent to independently manage their health ( n = 10, 9.1%). Conclusions Health care providers can assist parents/caregivers in learning strategies for instructing their AYASHCN about condition‐related knowledge and skills as well as provide support for ‘letting go’ of the caregiver role during the HCT to adult‐focused health services and adulthood. Communication between the AYASCH, their parents/caregivers and paediatric‐ and adult‐focused providers needs to be consistent and comprehensive to ensure continuity of care and a successful HCT. We also offered strategies to address the outcomes suggested by the participants of this study." @default.
• W4323921051 created "2023-03-12" @default.
• W4323921051 creator A5014567133 @default.
• W4323921051 creator A5019574434 @default.
• W4323921051 creator A5030276741 @default.
• W4323921051 creator A5043748560 @default.
• W4323921051 creator A5047873885 @default.
• W4323921051 creator A5064695603 @default.
• W4323921051 creator A5067678274 @default.
• W4323921051 date "2023-03-16" @default.
• W4323921051 modified "2023-10-17" @default.
• W4323921051 title "Stakeholders' perspectives on caregiver outcomes for health care transition for adolescents and young adults with special health care needs: A qualitative study" @default.
• W4323921051 cites W1481785200 @default.
• W4323921051 cites W1790404736 @default.
• W4323921051 cites W1860868034 @default.
• W4323921051 cites W1960105005 @default.
• W4323921051 cites W2003104517 @default.
• W4323921051 cites W2006804811 @default.
• W4323921051 cites W2021151643 @default.
• W4323921051 cites W2029386180 @default.
• W4323921051 cites W2039078021 @default.
• W4323921051 cites W2039197552 @default.
• W4323921051 cites W2062711118 @default.
• W4323921051 cites W2071427434 @default.
• W4323921051 cites W2079684937 @default.
• W4323921051 cites W2119366833 @default.
• W4323921051 cites W2122041011 @default.
• W4323921051 cites W2132573878 @default.
• W4323921051 cites W2150247449 @default.
• W4323921051 cites W2153751988 @default.
• W4323921051 cites W2158428587 @default.
• W4323921051 cites W2160478181 @default.
• W4323921051 cites W2168592568 @default.
• W4323921051 cites W2263137899 @default.
• W4323921051 cites W2314020429 @default.
• W4323921051 cites W2386170543 @default.
• W4323921051 cites W2518412339 @default.
• W4323921051 cites W2596651562 @default.
• W4323921051 cites W2610950540 @default.
• W4323921051 cites W2759730694 @default.
• W4323921051 cites W2796369382 @default.
• W4323921051 cites W2809167259 @default.
• W4323921051 cites W2890668788 @default.
• W4323921051 cites W2920910914 @default.
• W4323921051 cites W2943517451 @default.
• W4323921051 cites W2944805255 @default.
• W4323921051 cites W2947354904 @default.
• W4323921051 cites W2951940663 @default.
• W4323921051 cites W2963863691 @default.
• W4323921051 cites W3033961944 @default.
• W4323921051 cites W3037703077 @default.
• W4323921051 cites W3046592916 @default.
• W4323921051 cites W3119037773 @default.
• W4323921051 cites W3175812634 @default.
• W4323921051 cites W4239599401 @default.
• W4323921051 cites W4240107218 @default.
• W4323921051 doi "https://doi.org/10.1111/cch.13114" @default.
• W4323921051 hasPubMedId "https://pubmed.ncbi.nlm.nih.gov/36905081" @default.
• W4323921051 hasPublicationYear "2023" @default.
• W4323921051 type Work @default.
• W4323921051 citedByCount "0" @default.
• W4323921051 crossrefType "journal-article" @default.
• W4323921051 hasAuthorship W4323921051A5014567133 @default.
• W4323921051 hasAuthorship W4323921051A5019574434 @default.
• W4323921051 hasAuthorship W4323921051A5030276741 @default.
• W4323921051 hasAuthorship W4323921051A5043748560 @default.
• W4323921051 hasAuthorship W4323921051A5047873885 @default.
• W4323921051 hasAuthorship W4323921051A5064695603 @default.
• W4323921051 hasAuthorship W4323921051A5067678274 @default.
• W4323921051 hasConcept C116537 @default.
• W4323921051 hasConcept C136264566 @default.
• W4323921051 hasConcept C144024400 @default.
• W4323921051 hasConcept C15744967 @default.
• W4323921051 hasConcept C159110408 @default.
• W4323921051 hasConcept C160735492 @default.
• W4323921051 hasConcept C162324750 @default.
• W4323921051 hasConcept C190248442 @default.
• W4323921051 hasConcept C2780378061 @default.
• W4323921051 hasConcept C36289849 @default.
• W4323921051 hasConcept C50522688 @default.
• W4323921051 hasConcept C512399662 @default.
• W4323921051 hasConcept C71924100 @default.
• W4323921051 hasConceptScore W4323921051C116537 @default.
• W4323921051 hasConceptScore W4323921051C136264566 @default.
• W4323921051 hasConceptScore W4323921051C144024400 @default.
• W4323921051 hasConceptScore W4323921051C15744967 @default.
• W4323921051 hasConceptScore W4323921051C159110408 @default.
• W4323921051 hasConceptScore W4323921051C160735492 @default.
• W4323921051 hasConceptScore W4323921051C162324750 @default.
• W4323921051 hasConceptScore W4323921051C190248442 @default.
• W4323921051 hasConceptScore W4323921051C2780378061 @default.
• W4323921051 hasConceptScore W4323921051C36289849 @default.
• W4323921051 hasConceptScore W4323921051C50522688 @default.
• W4323921051 hasConceptScore W4323921051C512399662 @default.
• W4323921051 hasConceptScore W4323921051C71924100 @default.
• W4323921051 hasIssue "6" @default.
• W4323921051 hasLocation W43239210511 @default.
• W4323921051 hasLocation W43239210512 @default.

• next