Matches in SemOpenAlex for { <https://semopenalex.org/work/W4360985080> ?p ?o ?g. }
Showing items 1 to 87 of
87
with 100 items per page.
- W4360985080 abstract "Abstract Patient and public involvement (PPI) must be more frequently embedded within clinical research to ensure translational outcomes are patient-led and meet patient needs. Active partnerships with patients and public groups are an important opportunity to hear patient voices, understand patient needs, and inform future research avenues. A hereditary renal cancer (HRC) PPI group was developed with the efforts of patient participants ( n = 9), pooled from recruits within the early detection for HRC pilot study, working in collaboration with researchers and healthcare professionals ( n = 8). Patient participants had HRC conditions including Von Hippel–Lindau ( n = 3) and Hereditary Leiomyomatosis and Renal Cell Carcinoma ( n = 5), and public participants included two patient Trustees ( n = 2) from VHL UK & Ireland Charity. Discussions among the enthusiastic participants guided the development of a novel patient information sheet for HRC patients. This communication tool was designed to aid patients when informing family members about their diagnoses and the wider implications for relatives, a gap identified by participants within group discussions. While this partnership was tailored for a specific HRC patient and public group, the process implemented can be employed for other hereditary cancer groups and could be transferable within other healthcare settings." @default.
- W4360985080 created "2023-03-30" @default.
- W4360985080 creator A5000623648 @default.
- W4360985080 creator A5014590345 @default.
- W4360985080 creator A5023043225 @default.
- W4360985080 creator A5023432591 @default.
- W4360985080 creator A5023736444 @default.
- W4360985080 creator A5032231635 @default.
- W4360985080 creator A5036008455 @default.
- W4360985080 creator A5040401340 @default.
- W4360985080 creator A5076835149 @default.
- W4360985080 creator A5089212925 @default.
- W4360985080 date "2023-01-01" @default.
- W4360985080 modified "2023-09-30" @default.
- W4360985080 title "Hereditary renal cancer patient and public involvement group: A collaborative, consensus decision process to develop a communication tool for patient use" @default.
- W4360985080 cites W2049504028 @default.
- W4360985080 cites W2802843454 @default.
- W4360985080 cites W2890454147 @default.
- W4360985080 cites W2993117518 @default.
- W4360985080 cites W3018325449 @default.
- W4360985080 cites W3042273353 @default.
- W4360985080 cites W4213074637 @default.
- W4360985080 doi "https://doi.org/10.1017/cts.2023.39" @default.
- W4360985080 hasPubMedId "https://pubmed.ncbi.nlm.nih.gov/37250990" @default.
- W4360985080 hasPublicationYear "2023" @default.
- W4360985080 type Work @default.
- W4360985080 citedByCount "0" @default.
- W4360985080 crossrefType "journal-article" @default.
- W4360985080 hasAuthorship W4360985080A5000623648 @default.
- W4360985080 hasAuthorship W4360985080A5014590345 @default.
- W4360985080 hasAuthorship W4360985080A5023043225 @default.
- W4360985080 hasAuthorship W4360985080A5023432591 @default.
- W4360985080 hasAuthorship W4360985080A5023736444 @default.
- W4360985080 hasAuthorship W4360985080A5032231635 @default.
- W4360985080 hasAuthorship W4360985080A5036008455 @default.
- W4360985080 hasAuthorship W4360985080A5040401340 @default.
- W4360985080 hasAuthorship W4360985080A5076835149 @default.
- W4360985080 hasAuthorship W4360985080A5089212925 @default.
- W4360985080 hasBestOaLocation W43609850801 @default.
- W4360985080 hasConcept C121608353 @default.
- W4360985080 hasConcept C126322002 @default.
- W4360985080 hasConcept C138816342 @default.
- W4360985080 hasConcept C159110408 @default.
- W4360985080 hasConcept C160735492 @default.
- W4360985080 hasConcept C17744445 @default.
- W4360985080 hasConcept C199539241 @default.
- W4360985080 hasConcept C2776511598 @default.
- W4360985080 hasConcept C2777471088 @default.
- W4360985080 hasConcept C2779473830 @default.
- W4360985080 hasConcept C3019806175 @default.
- W4360985080 hasConcept C512399662 @default.
- W4360985080 hasConcept C71750763 @default.
- W4360985080 hasConcept C71924100 @default.
- W4360985080 hasConceptScore W4360985080C121608353 @default.
- W4360985080 hasConceptScore W4360985080C126322002 @default.
- W4360985080 hasConceptScore W4360985080C138816342 @default.
- W4360985080 hasConceptScore W4360985080C159110408 @default.
- W4360985080 hasConceptScore W4360985080C160735492 @default.
- W4360985080 hasConceptScore W4360985080C17744445 @default.
- W4360985080 hasConceptScore W4360985080C199539241 @default.
- W4360985080 hasConceptScore W4360985080C2776511598 @default.
- W4360985080 hasConceptScore W4360985080C2777471088 @default.
- W4360985080 hasConceptScore W4360985080C2779473830 @default.
- W4360985080 hasConceptScore W4360985080C3019806175 @default.
- W4360985080 hasConceptScore W4360985080C512399662 @default.
- W4360985080 hasConceptScore W4360985080C71750763 @default.
- W4360985080 hasConceptScore W4360985080C71924100 @default.
- W4360985080 hasIssue "1" @default.
- W4360985080 hasLocation W43609850801 @default.
- W4360985080 hasLocation W43609850802 @default.
- W4360985080 hasLocation W43609850803 @default.
- W4360985080 hasOpenAccess W4360985080 @default.
- W4360985080 hasPrimaryLocation W43609850801 @default.
- W4360985080 hasRelatedWork W1549968580 @default.
- W4360985080 hasRelatedWork W2036170492 @default.
- W4360985080 hasRelatedWork W2054403001 @default.
- W4360985080 hasRelatedWork W2100226834 @default.
- W4360985080 hasRelatedWork W2413743987 @default.
- W4360985080 hasRelatedWork W2508605322 @default.
- W4360985080 hasRelatedWork W2763573806 @default.
- W4360985080 hasRelatedWork W4210569075 @default.
- W4360985080 hasRelatedWork W4377092915 @default.
- W4360985080 hasRelatedWork W4287185235 @default.
- W4360985080 hasVolume "7" @default.
- W4360985080 isParatext "false" @default.
- W4360985080 isRetracted "false" @default.
- W4360985080 workType "article" @default.