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- W4366332273 abstract "Purpose: Rare conditions are often poorly understood, creating barriers in determining the value treatments can provide. This study explored barriers and facilitators to personal health data sharing among those with one particular group of rare hematologic disorders, ie, sickle cell disorder (SCD) and its variants." @default.
- W4366332273 created "2023-04-20" @default.
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- W4366332273 date "2023-04-18" @default.
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- W4366332273 title "Attitudes Toward Personal Health Data Sharing Among People Living With Sickle Cell Disorder, Exemplar for Study of Rare Disease Populations" @default.
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- W4366332273 doi "https://doi.org/10.17294/2330-0698.2006" @default.
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