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• W4367303418 abstract "<h3>Objective:</h3> To understand the experiences and attitudes of persons with epilepsy of gestational capacity (PWEGC) regarding pregnancy and breastfeeding. <h3>Background:</h3> NA <h3>Design/Methods:</h3> A market research firm recruited PWEGC ages 18–45 years old currently taking an antiseizure medication (ASM) from a nationally representative panel to complete a survey. Respondent groups were compared by chi-square analysis. <h3>Results:</h3> Of 199 respondents, 62 recently had a child, 30 were pregnant, 91 were considering pregnancy, and 16 decided not to have a child. Over two-thirds of respondents believe that pregnancy is at least somewhat safe for PWEGC. A higher proportion of respondents who recently had a child or are pregnant/considering pregnancy believe that pregnancy planning is important compared to those who decided not to have a child (p<0.05). The most prevalent concerns cited by participants who were currently pregnant/considering pregnancy were prenatal exposure to ASMs (50%) and pregnancy impacting seizure control (50%). The most prevalent concern of participants who recently had a child was heritability of epilepsy (58%). Seventy-five percent of participants who recently had a child, or who are pregnant/considering pregnancy, report that reassurance from their physician is the leading factor in deciding to have a child. Forty-eight percent of these respondents were prescribed a different ASM once considering pregnancy, with adjustments <3 months for most. Among participants who chose to breastfeed, 53% were told by physicians that breastfeeding is safe while taking ASMs. Among participants who chose not to breastfeed, 61% had concerns about transmission of ASMs to the baby and 21% reported that they were told by physicians not to breastfeed because of their ASMs. <h3>Conclusions:</h3> Findings illuminate concerns of PWEGC regarding reproductive health and highlight the provider’s important role in shared decision-making. Results may inform best practices for providers counseling and educational initiatives for patients and providers. <b>Disclosure:</b> The institution of Dr. Kirkpatrick has received research support from American Academy of Neurology. The institution of Dr. Kirkpatrick has received research support from Academic Pediatric Association. The institution of Dr. Kirkpatrick has received research support from American Academy of Pediatrics. The institution of Dr. Kirkpatrick has received research support from Society of Family Planning. The institution of Dr. Kirkpatrick has received research support from North American Society for Pediatric and Adolescent Gynecology. Dr. Gerard has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Greenwich Pharmaceuticals. The institution of Dr. Gerard has received research support from NIH/NINDS. The institution of Dr. Gerard has received research support from Xenon Pharmaceuticals. The institution of an immediate family member of Dr. Gerard has received research support from NIH. The institution of an immediate family member of Dr. Gerard has received research support from Novo Nordisk. The institution of Dr. Gerard has received research support from Eisai, Inc. (via Stanford University). The institution of Dr. Voinescu has received research support from NIH. Dr. Voinescu has received personal compensation in the range of $500-$4,999 for serving as a Speaker with Neurodiem. Dr. Voinescu has received personal compensation in the range of $500-$4,999 for serving as a Speaker with Physicians’ Education Resouce. Dr. Voinescu has received personal compensation in the range of $500-$4,999 for serving as a Speaker with American Epilepsy Society. Dr. Voinescu has a non-compensated relationship as a Board Member and Chair with My Epilepsy Story that is relevant to AAN interests or activities. Dr. Voinescu has a non-compensated relationship as a Speaker with Epilepsy Foundation that is relevant to AAN interests or activities. Dr. Voinescu has a non-compensated relationship as a Grant Reviewer with Epilepsy Ireland that is relevant to AAN interests or activities. Dr. Voinescu has a non-compensated relationship as a Grant Reviewer with American Epilepsy Society that is relevant to AAN interests or activities. Dr. Voinescu has a non-compensated relationship as a Member of Scientific Advisory Committee with North American AED Pregnancy Registry that is relevant to AAN interests or activities. An immediate family member of Dr. Pack has received personal compensation for serving as an employee of REGENEXBIO. The institution of Dr. Pack has received research support from National Institutes of Health. Dr. Pack has received publishing royalties from a publication relating to health care. Dr. Li has nothing to disclose. Ms. Kemp has nothing to disclose. Dr. Pennell has received personal compensation in the range of $0-$499 for serving as an officer or member of the Board of Directors for American Epilepsy Society. The institution of Dr. Pennell has received research support from NIH. The institution of an immediate family member of Dr. Pennell has received research support from Department of Defense. The institution of an immediate family member of Dr. Pennell has received research support from Environmental Protection Agency. The institution of an immediate family member of Dr. Pennell has received research support from NIH. The institution of an immediate family member of Dr. Pennell has received research support from Advanced Energy Consortium. Dr. Pennell has received publishing royalties from a publication relating to health care." @default.
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• W4367303418 date "2023-04-25" @default.
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• W4367303418 title "Pregnancy and Breastfeeding: A Survey of People with Epilepsy about their Experiences and Attitudes (P14-1.010)" @default.
• W4367303418 doi "https://doi.org/10.1212/wnl.0000000000201843" @default.
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