FRINK Linked Data Fragments server

Matches in SemOpenAlex for { <https://semopenalex.org/work/W4367367966> ?p ?o ?g. }

• W4367367966 abstract "Abstract Background This study measured sleep quality among caregivers of patients with Dravet syndrome (DS) and assessed the impacts of mental health problems and caregiver burden on sleep quality. Methods This multicenter, cross-sectional study of patients with DS and their caregivers throughout Germany consisted of a questionnaire and a prospective 4-week diary querying disease characteristics, demographic data, living conditions, nocturnal supervision, and caregivers’ work situations. Sleep quality was assessed using the Pittsburgh Sleeping Quality Index (PSQI). The Hospital Anxiety and Depression Scale (HADS) and the Burden Scale for Family Caregivers (BSFC) were used to measure anxiety, symptoms of depression, and caregiver burden. Results Our analysis included 108 questionnaires and 82 four-week diaries. Patients with DS were 49.1% male (n = 53), with a mean age of 13.5 ± 10.0 years. Caregivers were 92.6% (n = 100) female, with a mean age of 44.7 ± 10.6 years. The overall mean PSQI score was 8.7 ± 3.5, with 76.9% of participants (n = 83) scoring 6 or higher, indicating abnormal sleep quality. The HADS for anxiety and depression had overall mean scores of 9.3 ± 4.3 and 7.9 ± 3.7, respectively; 61.8% and 50.9% of participants scored above the cutoff value of 8 for anxiety and depression, respectively. Statistical analyses revealed caregiver anxiety levels and patients’ sleep disturbances as major factors influencing PSQI scores. The overall mean BSFC score of 41.7 ± 11.7 indicates a moderate burden, with 45.3% of caregivers scoring 42 or higher. Conclusions Sleep quality is severely affected among caregivers of patients with DS, correlating with anxiety, comorbidities, and patients’ sleep disturbances. A holistic therapeutic approach should be implemented for patients with DS and their caregivers, focusing on the sleep quality and mental health of caregivers. Trial registration : German Clinical Trials Register (DRKS), DRKS00016967. Registered 27 May 2019, http://www.drks.de/DRKS00016967" @default.
• W4367367966 created "2023-04-30" @default.
• W4367367966 creator A5001848078 @default.
• W4367367966 creator A5006228180 @default.
• W4367367966 creator A5018035642 @default.
• W4367367966 creator A5020448510 @default.
• W4367367966 creator A5025082034 @default.
• W4367367966 creator A5028930979 @default.
• W4367367966 creator A5030536091 @default.
• W4367367966 creator A5035212508 @default.
• W4367367966 creator A5038389410 @default.
• W4367367966 creator A5040167428 @default.
• W4367367966 creator A5042463561 @default.
• W4367367966 creator A5047731378 @default.
• W4367367966 creator A5050067998 @default.
• W4367367966 creator A5054775264 @default.
• W4367367966 creator A5060150673 @default.
• W4367367966 creator A5063015953 @default.
• W4367367966 creator A5063894541 @default.
• W4367367966 creator A5065785358 @default.
• W4367367966 creator A5067312400 @default.
• W4367367966 creator A5069210529 @default.
• W4367367966 creator A5083154542 @default.
• W4367367966 creator A5085253413 @default.
• W4367367966 creator A5090283124 @default.
• W4367367966 date "2023-04-29" @default.
• W4367367966 modified "2023-10-17" @default.
• W4367367966 title "Sleep quality, anxiety, symptoms of depression, and caregiver burden among those caring for patients with Dravet syndrome: a prospective multicenter study in Germany" @default.
• W4367367966 cites W1480442999 @default.
• W4367367966 cites W1985540648 @default.
• W4367367966 cites W1987138256 @default.
• W4367367966 cites W1996149443 @default.
• W4367367966 cites W2024343680 @default.
• W4367367966 cites W2027670854 @default.
• W4367367966 cites W2071609322 @default.
• W4367367966 cites W2079607214 @default.
• W4367367966 cites W2120986114 @default.
• W4367367966 cites W2125027291 @default.
• W4367367966 cites W2140968331 @default.
• W4367367966 cites W2151487996 @default.
• W4367367966 cites W2159385597 @default.
• W4367367966 cites W2170194739 @default.
• W4367367966 cites W2346722537 @default.
• W4367367966 cites W2398625550 @default.
• W4367367966 cites W2469144905 @default.
• W4367367966 cites W2534591800 @default.
• W4367367966 cites W2544534185 @default.
• W4367367966 cites W2592159301 @default.
• W4367367966 cites W2599076725 @default.
• W4367367966 cites W2606743026 @default.
• W4367367966 cites W2732804856 @default.
• W4367367966 cites W2736365965 @default.
• W4367367966 cites W2738426938 @default.
• W4367367966 cites W2763605737 @default.
• W4367367966 cites W2767422484 @default.
• W4367367966 cites W2789312085 @default.
• W4367367966 cites W2805539748 @default.
• W4367367966 cites W2904308873 @default.
• W4367367966 cites W2918466418 @default.
• W4367367966 cites W2953834411 @default.
• W4367367966 cites W2963021230 @default.
• W4367367966 cites W3020919798 @default.
• W4367367966 cites W3051775721 @default.
• W4367367966 cites W3080135035 @default.
• W4367367966 cites W3081196837 @default.
• W4367367966 cites W3092689911 @default.
• W4367367966 cites W3118379552 @default.
• W4367367966 cites W3138153224 @default.
• W4367367966 cites W3184873649 @default.
• W4367367966 cites W4210427960 @default.
• W4367367966 cites W4213204346 @default.
• W4367367966 cites W4281758685 @default.
• W4367367966 cites W4292229870 @default.
• W4367367966 cites W4300981509 @default.
• W4367367966 doi "https://doi.org/10.1186/s13023-023-02697-3" @default.
• W4367367966 hasPubMedId "https://pubmed.ncbi.nlm.nih.gov/37120555" @default.
• W4367367966 hasPublicationYear "2023" @default.
• W4367367966 type Work @default.
• W4367367966 citedByCount "0" @default.
• W4367367966 crossrefType "journal-article" @default.
• W4367367966 hasAuthorship W4367367966A5001848078 @default.
• W4367367966 hasAuthorship W4367367966A5006228180 @default.
• W4367367966 hasAuthorship W4367367966A5018035642 @default.
• W4367367966 hasAuthorship W4367367966A5020448510 @default.
• W4367367966 hasAuthorship W4367367966A5025082034 @default.
• W4367367966 hasAuthorship W4367367966A5028930979 @default.
• W4367367966 hasAuthorship W4367367966A5030536091 @default.
• W4367367966 hasAuthorship W4367367966A5035212508 @default.
• W4367367966 hasAuthorship W4367367966A5038389410 @default.
• W4367367966 hasAuthorship W4367367966A5040167428 @default.
• W4367367966 hasAuthorship W4367367966A5042463561 @default.
• W4367367966 hasAuthorship W4367367966A5047731378 @default.
• W4367367966 hasAuthorship W4367367966A5050067998 @default.
• W4367367966 hasAuthorship W4367367966A5054775264 @default.
• W4367367966 hasAuthorship W4367367966A5060150673 @default.
• W4367367966 hasAuthorship W4367367966A5063015953 @default.
• W4367367966 hasAuthorship W4367367966A5063894541 @default.
• W4367367966 hasAuthorship W4367367966A5065785358 @default.
• W4367367966 hasAuthorship W4367367966A5067312400 @default.
• W4367367966 hasAuthorship W4367367966A5069210529 @default.

• next