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• W4376871012 abstract "This article describes the development of a participatory methodological study involving autistic people with varying levels of support needs in the design and validation of an instrument devised to assess the effects of social isolation during the COVID-19 pandemic and the strategies used to cope with the crisis. The development of the instrument involved the following stages: Definition of the domains to be assessed (researchers in consultation with experts and autistic people); Design of the instrument (researchers with the co-participation of autistic people); Validation of the instrument (by experts and autistic people, led by the researchers); and Final approval of the instrument (co-participation between researchers and autistic people). In addition to making the instrument more robust, the participation of autistic people in the design and application of the instrument reinforced the importance of strategies to include autistic people in research as both study participants and co-researchers.Nesse contexto, o objetivo deste artigo é descrever o desenvolvimento de uma pesquisa, envolvendo pessoas autistas, com diferentes demandas de suporte. Trata-se de um estudo metodológico e participativo, com a construção e validação de um instrumento de coleta de dados. O instrumento em questão visou analisar os efeitos de um período de crise sociossanitária e as estratégias de enfrentamento utilizadas por pessoas autistas, sendo desenvolvido para utilização no período mais crítico do isolamento social relacionado à pandemia do COVID-19. A construção do instrumento seguiu as seguintes etapas com os respectivos envolvidos: Determinação dos domínios a serem avaliados (pesquisadoras com consulta e experts e autistas); Elaboração instrumento (pesquisadoras com coparticipação de autistas); Validação do instrumento (experts e pessoas autistas, com a condução das pesquisadoras); Aprovação final do instrumento (coparticipação das pesquisadoras e de pessoas autistas). A participação de pessoas autistas na elaboração do instrumento de coleta de dados e no planejamento de sua aplicação, além de fortalecer o instrumento, ilustra a importância de estratégias de inclusão também na condução de pesquisas científicas." @default.
• W4376871012 created "2023-05-18" @default.
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• W4376871012 date "2023-05-01" @default.
• W4376871012 modified "2023-09-30" @default.
• W4376871012 title "Desenvolvimento de estratégia de pesquisa participativa envolvendo pessoas autistas com diferentes níveis de suporte" @default.
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• W4376871012 doi "https://doi.org/10.1590/1413-81232023285.15282022" @default.
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