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• W4379522760 abstract "Background In the DANBIO Registry patients with inflammatory arthritis have entered PROs for more than 20 years. In 2016 a group of patients suggested that their experiences and opinions about entering PROs should be taken into account, as the they found room for improvement. In 2018 a qualitative research study confirmed knowledge gaps in the use and purpose of DANBIO – gaps among patients, front personal and health care providers. In 2022 new results could be implemented. Objectives After the research study three different goals were set up: [1]To increase knowledge of the DANBIO Registry being used for three different purposes. [2]To make patients aware that they can enter PROs in different ways. [3]To assure better quality of PROs by enhancing patient’s adherence. Methods An interdisciplinary user group was established. The group consisted of patients with different types of inflammatory arhtritis, rheumatologists, nurses etc. The group decided to produce different materials for different platforms. The group produced the materials themselves in a cooperation with room for everyone’s professional qualifications. The patients could offer patient’s experiences as well as being persons with competences from education and worklife. Results Three user guides about the use of DANBIO were produced for three target groups. A group of patients scripted, filmed and produced a 5 minutes video providing the patients with relevant knowledge of PROs in DANBIO. The video was filmed at four different rheumatological departments and in patient’s private homes. The video wil be shown in the waiting rooms of the hospitals and it can be seen on the Internet. Conclusion The work of the user group created a joint understanding and a multi pronged perspective on what “good quality” means in rheumatological care. By clarifying how the same data was presented and used differently various solutions were created to meet the need for more knowledge from staff, increase patient’s confidence in entering PROs and increase knowledge of the DANBIO registry in general. The video is provided with English subtitles and can be shown if this abstract is chosen for presentation. Reference [1] www.danbio.dk - www.gigtforeningen.dk Acknowledgements DANBIO. Disclosure of Interests None Declared." @default.
• W4379522760 created "2023-06-07" @default.
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• W4379522760 date "2023-05-30" @default.
• W4379522760 modified "2023-09-27" @default.
• W4379522760 title "POS0200-PARE HOW USER INVOLVEMENT INCREASED THE QUALITY OF PROS" @default.
• W4379522760 doi "https://doi.org/10.1136/annrheumdis-2023-eular.748" @default.
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