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- W4379980322 abstract "Sexual and reproductive health (SRH) within cystic fibrosis (CF) is recognised as an increasingly important aspect of holistic care. Recent studies indicate that people with CF (PwCF) report inadequate SRH information from their care teams and have significantly different SRH experiences to non-CF peers. This paper aims to capture the current SRH care experiences of PwCF attending an adult centre and to inform future service development. A paper questionnaire was issued to 35 PwCF across inpatient and outpatient settings within a 4 week period using convenience sampling. Completion rate was 97% (34/35). Ages ranged from 17–25 years (26%), 26–35 years (44%), 36–45 years (18%), 46–55 years (9%) and 3% unknown. Gender identity was 53% (18) male, 38% (13) female, 6% (2) nonbinary and 3% (1) trans male and respondents identified their sexuality as 79% (27) heterosexual, 9% (3) homosexual, 3% (1) bisexual, 3% (1) pansexual and 6% (2) unknown. Respondents identified areas of SRH that they would like support with: Tabled 1SRH areasNumber of respondents%Family planning/Fertility1441Relationships1235Sexual functioning926Low ejaculate volume/reduced vaginal lubrication926Urinary incontinence824Cervical screening824Sexually transmitted infections824Prostate screening721Contraception618Vaginal/penile thrush618Bowel incontinence515Menopause515Menstrual cycles412Gender Identity39Sexuality13No issues in any of the above412 Open table in a new tab The majority of PwCF felt most comfortable raising SRH issues with the CF team (83%) over their GP (23%) or other health care services (14%). However, only 44% recalled discussing SRH with the CF team, 41% reported that they had never discussed SRH and 15% were unsure. Additional feedback opportunities were provided and included themes surrounding availability of SRH information and changing needs in response to modulator therapy. There are several areas of SRH that PwCF need support and despite feeling comfortable discussing SRH with the CF team, more than half cannot recall having SRH discussions. Further work is needed to evaluate SRH current staff knowledge and to support our staff to meet the evolving SRH needs of PwCF." @default.
- W4379980322 created "2023-06-10" @default.
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- W4379980322 date "2023-06-01" @default.
- W4379980322 modified "2023-09-24" @default.
- W4379980322 title "P386 Improving support for sexual and reproductive health in adult patients with cystic fibrosis" @default.
- W4379980322 doi "https://doi.org/10.1016/s1569-1993(23)00756-7" @default.
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