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- W4379980900 abstract "The All Wales Adult Cystic Fibrosis Centre, a service with ~330 patients, has noted a number identifying as transgender. Biological sex influences prognosis in cystic fibrosis (CF), with suggestions oestrogen may affect the pulmonary system. Sex registered at birth is used to calculate predicted FEV1 and body composition values and chest binding can affect lung function results. Evaluate the demographics of those who have notified the adult CF team that they identify as transgender and consider possible implications for their CF care. Clinical letters of those known to identify as transgender were searched for terms such as “transgender,” “gender dysphoria,” “bind” & previously used first name, and data collected on age, how they identify, and any gender affirming treatments. Five adult patients were identified, with a paediatric patient due to transition to the adult team soon. The average current age is 19.2 years old, range 15 to 21 years. Four identified as trans men (female to male) and 2 as trans women (male to female). Age transgender was first mentioned in letters was predominantly between 14–16, with 1 having the first mention at age 21, and 1 had moved from abroad at 19 already identifying as trans. Half are on gender affirming hormone therapy. Chest binding was mentioned in only 1 letter. There is a significant population (1.7%) identifying as transgender within our service compared to UK prevalence estimate of 0.7%. Surveys of UK centres will help identify ifWales is an outlier, or this is a growing area. Impacts on health and lung function are unknown. Further research is needed to explore effects of gender affirming treatments on physiological parameters within CF. It is important to consider how we record gender and sex at birth within medical records and assessments. Involvement of patients will be vital." @default.
- W4379980900 created "2023-06-10" @default.
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- W4379980900 date "2023-06-01" @default.
- W4379980900 modified "2023-09-24" @default.
- W4379980900 title "P389 Evolving gender identification within the cystic fibrosis population and considerations on potential effects on lung function results" @default.
- W4379980900 doi "https://doi.org/10.1016/s1569-1993(23)00759-2" @default.
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