Matches in SemOpenAlex for { <https://semopenalex.org/work/W4380883904> ?p ?o ?g. }
Showing items 1 to 87 of
87
with 100 items per page.
- W4380883904 abstract "Abstract Background The prevalence of neurodegenerative diseases is increasing as the population ages. As these diseases are often incurable, progressive, and associated with significant loss of ability to communicate over time, it is paramount that advanced care planning (ACP) take place early in the disease trajectory to facilitate goal‐concordant care. There is increasing recognition of the barriers for neurologists to facilitate ACP and end‐of‐life care. Palliative care is a medical speciality that focuses on improving quality of life for patients living with serious illness, including helping with healthcare planning and decision‐making that align with the individual’s values and goals. However, there is a paucity of literature on how to best integrate palliative care or which elements of an integrated neuro‐palliative approach are the most beneficial to patients, caregivers, and clinicians. Our study aims to assess the experience of an embedded pilot clinic between Neurology and Palliative Care at the University Health Network (UHN) Memory Clinic on patients/caregivers and health care practitioners. Methods We aim to recruit 60 participants, including patients and family members, seen at the UHN Supportive Care Memory Clinic, and who screen positive for three of seven triggers for palliative care involvement for neurological patients as proposed by the National End of Life Care Programme of National Health Service in England. ACP conversations will follow an evidence‐based semi‐structured conversation guide. The impact of the clinic will be evaluated using patient, caregiver, and both Neurology and Palliative Care team member experience surveys. Secondary measures will include the percentage change in ACP and Power of Attorney documentation pre and post initiation of the clinic. Results From clinic inception in June 2020, 19 patients were seen (all‐virtual). Due to the COVID‐19 pandemic, the clinic was paused for the majority of 2021. Our study received UHN Quality Improvement approval in March 2021, and we began enrolling patients into our study in November 2021; enrolment is ongoing. Conclusions The results of this study will serve as a guide for quality improvement of our existing clinic and can inform future implementation of scalable integrated models of care between palliative care and neurology, and for other subspecialties and centres." @default.
- W4380883904 created "2023-06-17" @default.
- W4380883904 creator A5000151058 @default.
- W4380883904 creator A5003058564 @default.
- W4380883904 creator A5009886407 @default.
- W4380883904 creator A5042528972 @default.
- W4380883904 creator A5052406385 @default.
- W4380883904 creator A5057453608 @default.
- W4380883904 creator A5057563295 @default.
- W4380883904 creator A5057595715 @default.
- W4380883904 creator A5065524626 @default.
- W4380883904 creator A5089813112 @default.
- W4380883904 creator A5090385020 @default.
- W4380883904 date "2023-06-01" @default.
- W4380883904 modified "2023-09-27" @default.
- W4380883904 title "Improving collaboration between palliative care and neurology: Focus on patient, family & healthcare provider experience" @default.
- W4380883904 doi "https://doi.org/10.1002/alz.060197" @default.
- W4380883904 hasPublicationYear "2023" @default.
- W4380883904 type Work @default.
- W4380883904 citedByCount "0" @default.
- W4380883904 crossrefType "journal-article" @default.
- W4380883904 hasAuthorship W4380883904A5000151058 @default.
- W4380883904 hasAuthorship W4380883904A5003058564 @default.
- W4380883904 hasAuthorship W4380883904A5009886407 @default.
- W4380883904 hasAuthorship W4380883904A5042528972 @default.
- W4380883904 hasAuthorship W4380883904A5052406385 @default.
- W4380883904 hasAuthorship W4380883904A5057453608 @default.
- W4380883904 hasAuthorship W4380883904A5057563295 @default.
- W4380883904 hasAuthorship W4380883904A5057595715 @default.
- W4380883904 hasAuthorship W4380883904A5065524626 @default.
- W4380883904 hasAuthorship W4380883904A5089813112 @default.
- W4380883904 hasAuthorship W4380883904A5090385020 @default.
- W4380883904 hasBestOaLocation W43808839041 @default.
- W4380883904 hasConcept C118552586 @default.
- W4380883904 hasConcept C142724271 @default.
- W4380883904 hasConcept C15744967 @default.
- W4380883904 hasConcept C159110408 @default.
- W4380883904 hasConcept C160735492 @default.
- W4380883904 hasConcept C162324750 @default.
- W4380883904 hasConcept C16568411 @default.
- W4380883904 hasConcept C2777200299 @default.
- W4380883904 hasConcept C2777995714 @default.
- W4380883904 hasConcept C2779134260 @default.
- W4380883904 hasConcept C2780879335 @default.
- W4380883904 hasConcept C2908647359 @default.
- W4380883904 hasConcept C2994186709 @default.
- W4380883904 hasConcept C46312422 @default.
- W4380883904 hasConcept C50522688 @default.
- W4380883904 hasConcept C512399662 @default.
- W4380883904 hasConcept C71924100 @default.
- W4380883904 hasConcept C99454951 @default.
- W4380883904 hasConceptScore W4380883904C118552586 @default.
- W4380883904 hasConceptScore W4380883904C142724271 @default.
- W4380883904 hasConceptScore W4380883904C15744967 @default.
- W4380883904 hasConceptScore W4380883904C159110408 @default.
- W4380883904 hasConceptScore W4380883904C160735492 @default.
- W4380883904 hasConceptScore W4380883904C162324750 @default.
- W4380883904 hasConceptScore W4380883904C16568411 @default.
- W4380883904 hasConceptScore W4380883904C2777200299 @default.
- W4380883904 hasConceptScore W4380883904C2777995714 @default.
- W4380883904 hasConceptScore W4380883904C2779134260 @default.
- W4380883904 hasConceptScore W4380883904C2780879335 @default.
- W4380883904 hasConceptScore W4380883904C2908647359 @default.
- W4380883904 hasConceptScore W4380883904C2994186709 @default.
- W4380883904 hasConceptScore W4380883904C46312422 @default.
- W4380883904 hasConceptScore W4380883904C50522688 @default.
- W4380883904 hasConceptScore W4380883904C512399662 @default.
- W4380883904 hasConceptScore W4380883904C71924100 @default.
- W4380883904 hasConceptScore W4380883904C99454951 @default.
- W4380883904 hasIssue "S5" @default.
- W4380883904 hasLocation W43808839041 @default.
- W4380883904 hasOpenAccess W4380883904 @default.
- W4380883904 hasPrimaryLocation W43808839041 @default.
- W4380883904 hasRelatedWork W1700448068 @default.
- W4380883904 hasRelatedWork W1998808158 @default.
- W4380883904 hasRelatedWork W2063646942 @default.
- W4380883904 hasRelatedWork W2161124101 @default.
- W4380883904 hasRelatedWork W2240866906 @default.
- W4380883904 hasRelatedWork W2899042732 @default.
- W4380883904 hasRelatedWork W2948474061 @default.
- W4380883904 hasRelatedWork W3021546060 @default.
- W4380883904 hasRelatedWork W3021585455 @default.
- W4380883904 hasRelatedWork W4312103024 @default.
- W4380883904 hasVolume "19" @default.
- W4380883904 isParatext "false" @default.
- W4380883904 isRetracted "false" @default.
- W4380883904 workType "article" @default.