Matches in SemOpenAlex for { <https://semopenalex.org/work/W4383999098> ?p ?o ?g. }
- W4383999098 abstract "This scoping review identifies and maps the breadth of available evidence on relatives' wants and needs for involvement throughout the course of the disease of patients with a malignant brain tumor.Patients diagnosed with a malignant brain tumor often have a poor prognosis, including a rapid progression of the disease, with changing physical, cognitive, and psychosocial symptoms. The caregiver burden is described as multifaceted, and relatives often neglect their own physical, emotional, and social needs.This review included studies that defined or assessed the wants and needs for involvement of relatives of patients with a malignant brain tumor throughout the disease and treatment trajectory. The populations were relatives of patients with a malignant brain tumor in various settings.The JBI methodology for scoping reviews was employed in accordance with a previously published a priori protocol. An extensive search was conducted in the MEDLINE (PubMed), CINAHL (EBSCO) and Embase (Ovid). Gray literature was searched for using Grey Matters (CADTH) and BASE. The initial search was conducted in February 2020 and updated in March 2022. This review was limited to studies published since January 2010 in English, German, or Scandinavian languages. The data were extracted using a data extraction tool (authors, year of publication, country of origin, setting, study methods, and findings related to wants and needs for involvement) created by the authors. Textual data mapping of wants and needs for involvement were synthesized narratively using a basic qualitative content analysis The review findings are reported in this paper as a descriptive summary, with tables and figures to support the data.The search identified 3830 studies, of which 10 were included. The studies were conducted in 6 countries and were published between 2010 and 2018. In total, 4 studies applied a qualitative study design that used semi-structured interviews, 2 studies applied a mix-method design that used questionnaires and semi-structured interviews, 1 study applied a multi-method design, and 3 studies used a quantitative survey. Research was conducted in a variety of settings, from an inpatient neurology center/neuro-oncology to post-bereavement. The findings showed that most of the relatives' needs were related to the caregiver role. The relatives were actively involved in the patients' disease and treatment trajectories. However, relatives were often required to adopt the caregiver role and a large amount of responsibility at short notice. Thus, they expressed their need for a stronger connection with health care professionals because their needs changed as rapidly as the disease progressed. Relatives also had a need related to maintaining hope, which was essential for their involvement, and their wants for involvement in the patients' disease and treatment trajectories depended on a significant and timely amount of information.The findings reveal that relatives are actively involved in the patients' disease and treatment trajectories. The relatives want and need support for their involvement, and these desires are related directly to the accessibility and availability of health care professionals, as the demands placed on them change rapidly throughout the progression of the disease. One way to address relatives' wants and needs might be to further strengthen the relationship between the relatives and health care professionals.A Danish-language version of the abstract of this review is available as Supplemental Digital Content [http://links.lww.com/SRX/A26]." @default.
- W4383999098 created "2023-07-13" @default.
- W4383999098 creator A5019422551 @default.
- W4383999098 creator A5026913614 @default.
- W4383999098 creator A5035550997 @default.
- W4383999098 creator A5083730477 @default.
- W4383999098 creator A5091025399 @default.
- W4383999098 date "2023-07-12" @default.
- W4383999098 modified "2023-10-16" @default.
- W4383999098 title "Wants and needs for involvement reported by relatives of patients with a malignant brain tumour: a scoping review" @default.
- W4383999098 cites W1674491964 @default.
- W4383999098 cites W1977607656 @default.
- W4383999098 cites W1979430266 @default.
- W4383999098 cites W2000097010 @default.
- W4383999098 cites W2012791611 @default.
- W4383999098 cites W2015650321 @default.
- W4383999098 cites W2040427798 @default.
- W4383999098 cites W2061237748 @default.
- W4383999098 cites W2065178168 @default.
- W4383999098 cites W2082783231 @default.
- W4383999098 cites W2105912416 @default.
- W4383999098 cites W2131917319 @default.
- W4383999098 cites W2135465849 @default.
- W4383999098 cites W2150746536 @default.
- W4383999098 cites W2157641738 @default.
- W4383999098 cites W2158681922 @default.
- W4383999098 cites W2162850290 @default.
- W4383999098 cites W2164914233 @default.
- W4383999098 cites W2201437090 @default.
- W4383999098 cites W2331418601 @default.
- W4383999098 cites W2520520279 @default.
- W4383999098 cites W2588064548 @default.
- W4383999098 cites W2602771166 @default.
- W4383999098 cites W2745344069 @default.
- W4383999098 cites W2756072258 @default.
- W4383999098 cites W2767028786 @default.
- W4383999098 cites W2768082778 @default.
- W4383999098 cites W2783858334 @default.
- W4383999098 cites W2786884557 @default.
- W4383999098 cites W2790156231 @default.
- W4383999098 cites W2793130520 @default.
- W4383999098 cites W2891378911 @default.
- W4383999098 cites W2982655487 @default.
- W4383999098 cites W30336109 @default.
- W4383999098 cites W3092814465 @default.
- W4383999098 cites W3172838496 @default.
- W4383999098 cites W3175786175 @default.
- W4383999098 cites W3184344168 @default.
- W4383999098 cites W3185521883 @default.
- W4383999098 cites W3215545703 @default.
- W4383999098 cites W407550823 @default.
- W4383999098 cites W4200327950 @default.
- W4383999098 cites W4294215472 @default.
- W4383999098 cites W4318919632 @default.
- W4383999098 doi "https://doi.org/10.11124/jbies-22-00311" @default.
- W4383999098 hasPubMedId "https://pubmed.ncbi.nlm.nih.gov/37435678" @default.
- W4383999098 hasPublicationYear "2023" @default.
- W4383999098 type Work @default.
- W4383999098 citedByCount "0" @default.
- W4383999098 crossrefType "journal-article" @default.
- W4383999098 hasAuthorship W4383999098A5019422551 @default.
- W4383999098 hasAuthorship W4383999098A5026913614 @default.
- W4383999098 hasAuthorship W4383999098A5035550997 @default.
- W4383999098 hasAuthorship W4383999098A5083730477 @default.
- W4383999098 hasAuthorship W4383999098A5091025399 @default.
- W4383999098 hasConcept C118552586 @default.
- W4383999098 hasConcept C142724271 @default.
- W4383999098 hasConcept C150966472 @default.
- W4383999098 hasConcept C15744967 @default.
- W4383999098 hasConcept C17744445 @default.
- W4383999098 hasConcept C199539241 @default.
- W4383999098 hasConcept C27415008 @default.
- W4383999098 hasConcept C2776289891 @default.
- W4383999098 hasConcept C2777466982 @default.
- W4383999098 hasConcept C2779134260 @default.
- W4383999098 hasConcept C2779473830 @default.
- W4383999098 hasConcept C2781145037 @default.
- W4383999098 hasConcept C61904560 @default.
- W4383999098 hasConcept C71924100 @default.
- W4383999098 hasConceptScore W4383999098C118552586 @default.
- W4383999098 hasConceptScore W4383999098C142724271 @default.
- W4383999098 hasConceptScore W4383999098C150966472 @default.
- W4383999098 hasConceptScore W4383999098C15744967 @default.
- W4383999098 hasConceptScore W4383999098C17744445 @default.
- W4383999098 hasConceptScore W4383999098C199539241 @default.
- W4383999098 hasConceptScore W4383999098C27415008 @default.
- W4383999098 hasConceptScore W4383999098C2776289891 @default.
- W4383999098 hasConceptScore W4383999098C2777466982 @default.
- W4383999098 hasConceptScore W4383999098C2779134260 @default.
- W4383999098 hasConceptScore W4383999098C2779473830 @default.
- W4383999098 hasConceptScore W4383999098C2781145037 @default.
- W4383999098 hasConceptScore W4383999098C61904560 @default.
- W4383999098 hasConceptScore W4383999098C71924100 @default.
- W4383999098 hasLocation W43839990981 @default.
- W4383999098 hasLocation W43839990982 @default.
- W4383999098 hasOpenAccess W4383999098 @default.
- W4383999098 hasPrimaryLocation W43839990981 @default.
- W4383999098 hasRelatedWork W2094729167 @default.
- W4383999098 hasRelatedWork W2162179651 @default.
- W4383999098 hasRelatedWork W2312416550 @default.