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• W4384616194 abstract "<h3>Objectives</h3> Respiratory infection is the leading cause of hospital admissions for children with cerebral palsy (CP).¹ Children with CP and other neurodisabilities are at increased risk of respiratory infections, for a number of reasons, which include swallowing difficulties, gastro-oesophageal reflux leading to aspiration and poor secretion clearance. Restrictive lung disease, caused by weakness and chest wall deformity, exacerbates the problem.² Following the 2020 publication of Prevention and management of respiratory disease in young people with cerebral palsy,³ the Association of Paediatric Chartered Physiotherapists (APCP) respiratory committee committed to use the publication to drive change for this vulnerable patient group in the United Kingdom. <h3>Methods</h3> The APCP respiratory committee (specialist paediatric respiratory physiotherapists from around the UK) formed a working group. The group consisted of committee members, paediatricians from the British Academy of Childhood Disability (BACD) and Speech and Language Therapists from the Paediatric Dysphagia Clinical Excellence Network (PDCEN). Engagement from Council for Disabled Children was sought to provide a voice of the child/family. A three part strategy was agreed: 1) to update the 2017 APCP commissioning tool [4] to support community paediatric respiratory physiotherapy posts 2) To create an APCP screening checklist to identify the children most at risk of respiratory compromise and 3) To disseminate the work with health care professionals and services across the UK A scoping questionnaire was sent to existing UK community respiratory services to gather information on provision, outcomes and screening procedures. <h3>Results</h3> Twenty five out of 31 services responded (81%). 24% screened all children and young people (CYP) in their service for respiratory compromise. The services had a varied mix of inpatient/outpatient/community provision. 45% of the services were based at a district general hospital (DGH), 27% in the community and 27% at a tertiary centre. Several teams shared data demonstrating that their services reduced hospital admissions, reduced length of stay and made associated cost savings as well as gaining positive feedback from families. <h3>Conclusions</h3> Screening methods will be reviewed by the working group, along with published literature, to develop an APCP screening checklist. This resource will support clinicians working with children with neurodisability to identify those most at risk of respiratory compromise. Screening children with neurodisability for respiratory compromise and providing community respiratory physiotherapy to address this has been shown to reduce admissions and improve patient experience. The APCP would like to promote this across the UK. <h3>References</h3> Meehan, <i>et al</i>. Hospital admissions in children with cerebral palsy, a data linkage study. 2017. Seddon, <i>et al</i>. Respiratory problems in children with neurological impairment. 2003. Gibson, <i>et al</i>. Prevention and management of respiratory disease in young people with cerebral palsy: consensus statement; 2020. APCP Respiratory Committee. Commissioning tool for community paediatric respiratory posts, 2017." @default.
• W4384616194 created "2023-07-18" @default.
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• W4384616194 date "2023-06-19" @default.
• W4384616194 modified "2023-09-25" @default.
• W4384616194 title "472 Moving consensus to action: a strategy to improve respiratory care for children with cerebral palsy and neurodisability across the UK" @default.
• W4384616194 doi "https://doi.org/10.1136/archdischild-2023-rcpch.66" @default.
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