Matches in SemOpenAlex for { <https://semopenalex.org/work/W4385307358> ?p ?o ?g. }
- W4385307358 endingPage "e000935" @default.
- W4385307358 startingPage "e000935" @default.
- W4385307358 abstract "Up to 83% of patients with SLE stop taking hydroxychloroquine (HCQ) within the first year due to knowledge gaps regarding the survival benefits of HCQ versus inflated fears of rare toxicity. Thus, there is a need for a shared decision-making tool that highlights HCQ's significant benefits versus rare harms to improve patients' understanding and align treatments with their values. The objective of this study was to describe development and piloting of a decision aid (HCQ-SAFE) to facilitate HCQ adherence, and safe, effective use by engaging patients in therapeutic decision-making.HCQ-SAFE was developed via a collaborative process involving patients, clinicians, implementation scientists and health literacy experts. The initial prototype was informed by Agency for Healthcare Research and Quality (AHRQ) low literacy principles and key themes about HCQ use from six prior patient and clinician focus groups, with iterative expert and stakeholder feedback to deliver a final prototype. We implemented HCQ-SAFE in four clinics to examine usability and feasibility on Likert scales (0-7) and net promoter score (0%-100%).The final HCQ-SAFE shared decision-making laminated tool organises data using pictograms showing how HCQ use reduces risk of organ damage, early death and blood clots versus low risk of eye toxicity.HCQ-SAFE was reviewed in all eligible patient visits (n=40) across four clinics on an average of ~8 min, including 25% non-English-speaking patients. All patients scored 100% on the knowledge post-test; no decisional conflicts were noted after using HCQ-SAFE. HCQ-SAFE garnered high clinician and patient satisfaction with 100% likelihood to recommend to peers.HCQ-SAFE is a stakeholder-informed feasible shared decision-making tool that enhances communication and can potentially improve knowledge, clarify misbeliefs and engage patients in treatment decisions, including those with limited English proficiency." @default.
- W4385307358 created "2023-07-28" @default.
- W4385307358 creator A5009909118 @default.
- W4385307358 creator A5027051353 @default.
- W4385307358 creator A5040700760 @default.
- W4385307358 creator A5048317345 @default.
- W4385307358 creator A5073539156 @default.
- W4385307358 creator A5079397471 @default.
- W4385307358 date "2023-07-01" @default.
- W4385307358 modified "2023-09-25" @default.
- W4385307358 title "Clarifying misbeliefs about hydroxychloroquine (HCQ): developing the HCQ benefits versus harm decision aid (HCQ-SAFE) per low health literacy standards" @default.
- W4385307358 cites W1518483167 @default.
- W4385307358 cites W1861410760 @default.
- W4385307358 cites W1910439551 @default.
- W4385307358 cites W2002008626 @default.
- W4385307358 cites W2004135257 @default.
- W4385307358 cites W2011840006 @default.
- W4385307358 cites W2014873778 @default.
- W4385307358 cites W2017050719 @default.
- W4385307358 cites W2029002123 @default.
- W4385307358 cites W2047529163 @default.
- W4385307358 cites W2057652027 @default.
- W4385307358 cites W2095161148 @default.
- W4385307358 cites W2096307337 @default.
- W4385307358 cites W2119483296 @default.
- W4385307358 cites W2128885025 @default.
- W4385307358 cites W2138664283 @default.
- W4385307358 cites W2144006748 @default.
- W4385307358 cites W2144885792 @default.
- W4385307358 cites W2147822700 @default.
- W4385307358 cites W2168030824 @default.
- W4385307358 cites W2302013022 @default.
- W4385307358 cites W2460218540 @default.
- W4385307358 cites W2575131381 @default.
- W4385307358 cites W2615390224 @default.
- W4385307358 cites W2783899083 @default.
- W4385307358 cites W2794078609 @default.
- W4385307358 cites W2808507037 @default.
- W4385307358 cites W2939432284 @default.
- W4385307358 cites W2943889612 @default.
- W4385307358 cites W2950711497 @default.
- W4385307358 cites W2964462519 @default.
- W4385307358 cites W4200559094 @default.
- W4385307358 cites W4242308600 @default.
- W4385307358 cites W4289346895 @default.
- W4385307358 cites W4308058137 @default.
- W4385307358 doi "https://doi.org/10.1136/lupus-2023-000935" @default.
- W4385307358 hasPubMedId "https://pubmed.ncbi.nlm.nih.gov/37500292" @default.
- W4385307358 hasPublicationYear "2023" @default.
- W4385307358 type Work @default.
- W4385307358 citedByCount "0" @default.
- W4385307358 crossrefType "journal-article" @default.
- W4385307358 hasAuthorship W4385307358A5009909118 @default.
- W4385307358 hasAuthorship W4385307358A5027051353 @default.
- W4385307358 hasAuthorship W4385307358A5040700760 @default.
- W4385307358 hasAuthorship W4385307358A5048317345 @default.
- W4385307358 hasAuthorship W4385307358A5073539156 @default.
- W4385307358 hasAuthorship W4385307358A5079397471 @default.
- W4385307358 hasBestOaLocation W43853073581 @default.
- W4385307358 hasConcept C126322002 @default.
- W4385307358 hasConcept C160735492 @default.
- W4385307358 hasConcept C162324750 @default.
- W4385307358 hasConcept C177713679 @default.
- W4385307358 hasConcept C2778843546 @default.
- W4385307358 hasConcept C2779123688 @default.
- W4385307358 hasConcept C2779134260 @default.
- W4385307358 hasConcept C3008058167 @default.
- W4385307358 hasConcept C50522688 @default.
- W4385307358 hasConcept C512399662 @default.
- W4385307358 hasConcept C524204448 @default.
- W4385307358 hasConcept C545542383 @default.
- W4385307358 hasConcept C547764534 @default.
- W4385307358 hasConcept C71924100 @default.
- W4385307358 hasConceptScore W4385307358C126322002 @default.
- W4385307358 hasConceptScore W4385307358C160735492 @default.
- W4385307358 hasConceptScore W4385307358C162324750 @default.
- W4385307358 hasConceptScore W4385307358C177713679 @default.
- W4385307358 hasConceptScore W4385307358C2778843546 @default.
- W4385307358 hasConceptScore W4385307358C2779123688 @default.
- W4385307358 hasConceptScore W4385307358C2779134260 @default.
- W4385307358 hasConceptScore W4385307358C3008058167 @default.
- W4385307358 hasConceptScore W4385307358C50522688 @default.
- W4385307358 hasConceptScore W4385307358C512399662 @default.
- W4385307358 hasConceptScore W4385307358C524204448 @default.
- W4385307358 hasConceptScore W4385307358C545542383 @default.
- W4385307358 hasConceptScore W4385307358C547764534 @default.
- W4385307358 hasConceptScore W4385307358C71924100 @default.
- W4385307358 hasFunder F4320332312 @default.
- W4385307358 hasIssue "2" @default.
- W4385307358 hasLocation W43853073581 @default.
- W4385307358 hasLocation W43853073582 @default.
- W4385307358 hasLocation W43853073583 @default.
- W4385307358 hasOpenAccess W4385307358 @default.
- W4385307358 hasPrimaryLocation W43853073581 @default.
- W4385307358 hasRelatedWork W1977194403 @default.
- W4385307358 hasRelatedWork W2006304352 @default.
- W4385307358 hasRelatedWork W2289594704 @default.
- W4385307358 hasRelatedWork W2411889672 @default.