FRINK Linked Data Fragments server

Matches in SemOpenAlex for { <https://semopenalex.org/work/W4385384941> ?p ?o ?g. }

• W4385384941 abstract "Background: The International Rare Diseases Research Consortium (IRDiRC) is an international initiative that aims to use research to facilitate rapid diagnosis and treatment of rare diseases. Objective: IRDiRC launched the Chrysalis Task Force to identify key financial and nonfinancial factors that make rare disease research and development attractive to companies. Methods: The Chrysalis Task Force was comprised of thought leaders from companies, patient advocacy groups, regulatory agencies, and research funders. The Task Force created a survey that was distributed to companies of different sizes with varied investment portfolios and interests in rare disease research. Based on the survey results, the Task Force then conducted targeted interviews. Results: The survey and interview respondents identified several factors that make rare disease research and development attractive (e.g. a good understanding of the underlying biology) as well as barriers (e.g. absence of an advocacy organization representing the affected community’s needs). The concept of Return On Investment allowed the exploration of factors that were weighed differently by survey and interview respondents, depending on a number of intrinsic and extrinsic issues. Conclusions: The Chrysalis Task Force identified factors attributable to rare disease research and development that may be of interest to and actionable by funders, academic researchers, patients and their families, companies, regulators, and payers in the medium term to short term. By addressing the identified challenges, involved parties may seek solutions to significantly advance the research and development of treatments for rare diseases." @default.
• W4385384941 created "2023-07-30" @default.
• W4385384941 creator A5007690560 @default.
• W4385384941 creator A5028172563 @default.
• W4385384941 creator A5030386100 @default.
• W4385384941 creator A5032150304 @default.
• W4385384941 creator A5033643112 @default.
• W4385384941 creator A5048628402 @default.
• W4385384941 creator A5051377245 @default.
• W4385384941 creator A5051426670 @default.
• W4385384941 creator A5057151351 @default.
• W4385384941 creator A5060709761 @default.
• W4385384941 creator A5079980656 @default.
• W4385384941 creator A5081134242 @default.
• W4385384941 creator A5081962337 @default.
• W4385384941 creator A5083352962 @default.
• W4385384941 creator A5084106931 @default.
• W4385384941 creator A5085523560 @default.
• W4385384941 creator A5090896983 @default.
• W4385384941 creator A5092567566 @default.
• W4385384941 date "2023-01-01" @default.
• W4385384941 modified "2023-09-26" @default.
• W4385384941 title "The IRDiRC Chrysalis Task Force: making rare disease research attractive to companies" @default.
• W4385384941 cites W2488393817 @default.
• W4385384941 cites W2744672018 @default.
• W4385384941 cites W2796659008 @default.
• W4385384941 cites W2895569615 @default.
• W4385384941 cites W2994844251 @default.
• W4385384941 cites W3016722055 @default.
• W4385384941 cites W3214212058 @default.
• W4385384941 doi "https://doi.org/10.1177/26330040231188979" @default.
• W4385384941 hasPubMedId "https://pubmed.ncbi.nlm.nih.gov/37529076" @default.
• W4385384941 hasPublicationYear "2023" @default.
• W4385384941 type Work @default.
• W4385384941 citedByCount "0" @default.
• W4385384941 crossrefType "journal-article" @default.
• W4385384941 hasAuthorship W4385384941A5007690560 @default.
• W4385384941 hasAuthorship W4385384941A5028172563 @default.
• W4385384941 hasAuthorship W4385384941A5030386100 @default.
• W4385384941 hasAuthorship W4385384941A5032150304 @default.
• W4385384941 hasAuthorship W4385384941A5033643112 @default.
• W4385384941 hasAuthorship W4385384941A5048628402 @default.
• W4385384941 hasAuthorship W4385384941A5051377245 @default.
• W4385384941 hasAuthorship W4385384941A5051426670 @default.
• W4385384941 hasAuthorship W4385384941A5057151351 @default.
• W4385384941 hasAuthorship W4385384941A5060709761 @default.
• W4385384941 hasAuthorship W4385384941A5079980656 @default.
• W4385384941 hasAuthorship W4385384941A5081134242 @default.
• W4385384941 hasAuthorship W4385384941A5081962337 @default.
• W4385384941 hasAuthorship W4385384941A5083352962 @default.
• W4385384941 hasAuthorship W4385384941A5084106931 @default.
• W4385384941 hasAuthorship W4385384941A5085523560 @default.
• W4385384941 hasAuthorship W4385384941A5090896983 @default.
• W4385384941 hasAuthorship W4385384941A5092567566 @default.
• W4385384941 hasBestOaLocation W43853849411 @default.
• W4385384941 hasConcept C142724271 @default.
• W4385384941 hasConcept C144133560 @default.
• W4385384941 hasConcept C15744967 @default.
• W4385384941 hasConcept C162324750 @default.
• W4385384941 hasConcept C162853370 @default.
• W4385384941 hasConcept C17744445 @default.
• W4385384941 hasConcept C187736073 @default.
• W4385384941 hasConcept C199539241 @default.
• W4385384941 hasConcept C27548731 @default.
• W4385384941 hasConcept C2779134260 @default.
• W4385384941 hasConcept C2780451532 @default.
• W4385384941 hasConcept C2985871740 @default.
• W4385384941 hasConcept C3020576202 @default.
• W4385384941 hasConcept C3116431 @default.
• W4385384941 hasConcept C39549134 @default.
• W4385384941 hasConcept C71924100 @default.
• W4385384941 hasConcept C94625758 @default.
• W4385384941 hasConceptScore W4385384941C142724271 @default.
• W4385384941 hasConceptScore W4385384941C144133560 @default.
• W4385384941 hasConceptScore W4385384941C15744967 @default.
• W4385384941 hasConceptScore W4385384941C162324750 @default.
• W4385384941 hasConceptScore W4385384941C162853370 @default.
• W4385384941 hasConceptScore W4385384941C17744445 @default.
• W4385384941 hasConceptScore W4385384941C187736073 @default.
• W4385384941 hasConceptScore W4385384941C199539241 @default.
• W4385384941 hasConceptScore W4385384941C27548731 @default.
• W4385384941 hasConceptScore W4385384941C2779134260 @default.
• W4385384941 hasConceptScore W4385384941C2780451532 @default.
• W4385384941 hasConceptScore W4385384941C2985871740 @default.
• W4385384941 hasConceptScore W4385384941C3020576202 @default.
• W4385384941 hasConceptScore W4385384941C3116431 @default.
• W4385384941 hasConceptScore W4385384941C39549134 @default.
• W4385384941 hasConceptScore W4385384941C71924100 @default.
• W4385384941 hasConceptScore W4385384941C94625758 @default.
• W4385384941 hasLocation W43853849411 @default.
• W4385384941 hasLocation W43853849412 @default.
• W4385384941 hasLocation W43853849413 @default.
• W4385384941 hasOpenAccess W4385384941 @default.
• W4385384941 hasPrimaryLocation W43853849411 @default.
• W4385384941 hasRelatedWork W1748314193 @default.
• W4385384941 hasRelatedWork W1976882322 @default.
• W4385384941 hasRelatedWork W2012220905 @default.
• W4385384941 hasRelatedWork W2182904951 @default.
• W4385384941 hasRelatedWork W2333539729 @default.
• W4385384941 hasRelatedWork W2509787619 @default.

• next