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- W4385428757 abstract "Abstract Background The terminology and definition of Autism Spectrum Disorder can inadvertently shift focus away from exploring the disregarded dimensions associated with autism that are both subtle and impactful. These dimensions are closely connected to social structures, policies, and power dynamics and they silently impact the well-being of individuals within the autism spectrum. This research aims to explore these overlooked aspects using a theoretical framework called structural violence. Methods A qualitative longitudinal approach was chosen to capture the intricacy and depth of participants' experiences in this research. The study was conducted in Kurdistan, Iran. A purposive sampling method was employed to select the participants, with eleven parents (four fathers and seven mothers) taking part. The study data comprised 29 interviews conducted with these 11 parents over a span of 30 months. Thematic analysis was utilized for data analysis. To enhance the scientific rigor of this research, four criteria, including Guba and Lincoln's principles, were implemented to ensure methodological accuracy. Results The research findings highlight four primary forms through which structural violence impacts children with ASD and their families: access to healthcare, geographic disparities, awareness and stigma, and poverty and financial burden. Additionally, the study identified 11 subthemes related to structural violence in the context of autism and families. Conclusions We illustrated how structural forces create barriers to accessing adequate healthcare services, exacerbate discrimination based on ethnicity and geography, perpetuate stigma, and contribute to poverty and the inability to meet basic needs. These factors not only worsen health issues but also deepen existing disparities in healthcare access and outcomes for children with ASD and families. we emphasizes the urgent need for systemic changes to address these issues. It is essential to promote public awareness, provide better access to health and support services, and address economic and political factors that contribute to these inequalities." @default.
- W4385428757 created "2023-08-01" @default.
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- W4385428757 date "2023-07-31" @default.
- W4385428757 modified "2023-09-27" @default.
- W4385428757 title "Exploring the Varied Manifestations of Structural Violence in the Lives of Children with Autism Spectrum Disorder (ASD) and Their Parents: A Qualitative Longitudinal Study in Kurdistan, Iran" @default.
- W4385428757 doi "https://doi.org/10.21203/rs.3.rs-3196100/v1" @default.
- W4385428757 hasPublicationYear "2023" @default.
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