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• W4385709923 abstract "In 2004 when the Primary Care Neurology Society was established, one of the main objectives was: to support the education of primary care health professionals to ensure people with suspected neurological conditions receive appropriate and timely specialist care. While today this remains a key objective, the Society has evolved considerably and recently introduced a new vision that acknowledges the need to listen to and learn from people's living or lived experience. That vision is: ‘to provide sustainable, consistent, and high-quality care and education services that consider and support the individual needs of the person, so they can live well in the community with suspected or confirmed neurological conditions’. To encourage the introduction of more person-centred care across neurosciences, helping to raise the standard of services across primary care and the wider neurology community. For the public to become more aware that health professionals are also people, some of whom have endured hearing life-altering medical news. To explain what the P-CNS means by being person-centred, I will share some content presented during this year's Royal College of Physicians annual conference: A human being regarded as an individual [OED] A person has: their narrative identity, and associated personal characteristics such as attitudes, beliefs, expectations and long-term life goals and priorities Relating the question of ‘what is a person?’ to the world of health care and neuroscience, the Society wrote in their paper, ‘…given that the sense of wellbeing is likely to be unique to the individual, when the disturbance to the nervous system is such that a diagnosis is reached, it is likely that the same diagnosis will affect people differently’.1 While this may seem obvious, it arose out of listening to the experiences of many people, including health care professionals who, when asked questions, felt the questions were more directed at the condition rather than toward the person. So, perhaps a good starting point to help in being more person-centred is to consider reviewing the nature of questions typically asked during a consultation. Establish an appropriate setting. Check the patient's perception of the situation prompting the conversation regarding the illness or test results. Determine the amount of information known or how much information is desired at that moment. Know the medical facts and their implication before initiating the conversation. Be comfortable with talking about the person's emotions, triggered by the news. Respond with empathy and consider sharing emotions that you may experience to support that sense of empathy. Establish a strategy for support, hope and help + reduce a feeling of ‘aloneness’, that can be experienced, following the news. (Adapted from: Rosezweig, MQ: Breaking bad news: a guide for effective and empathic communication2). For people to learn more from what it is like to hear life-altering medical news. For emotional health support to be provided for all, including health care professionals in imparting news and the individual receiving the news. To encourage more open, honest and secure discussions from the start. To encourage a feeling of hope, ownership, control, plus being ‘safe and secure’ – it is important to us all. One of the innovative ways of delivering person-centred care messages came at this year's Neuroconvention where we exhibited and ran a session on the new Person-Centred Rehab Standards developed by the growing Community Rehabilitation Alliance. Then, and in total contrast, at a Farmer's Market in Tonbridge, the Society supported the setting up of a new community ‘pop-up’ Neurocafe to offer a safe place for the local population of people living with a neurological condition to come together and support each other. encourage the sharing of thoughts and ideas, through conversation with people who have a trauma-informed experience, and stimulate the creation of practical solutions. If you share our wish to support the creation of further person-centred neuroscience solutions, please join us and visit our website at www.p-cns.org.uk." @default.
• W4385709923 created "2023-08-10" @default.
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• W4385709923 date "2023-07-01" @default.
• W4385709923 modified "2023-09-25" @default.
• W4385709923 title "Person‐centred neurosciences: using trauma‐informed living experiences" @default.
• W4385709923 cites W1976501699 @default.
• W4385709923 doi "https://doi.org/10.1002/pnp.795" @default.
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