FRINK Linked Data Fragments server

Matches in SemOpenAlex for { <https://semopenalex.org/work/W4386014724> ?p ?o ?g. }

• W4386014724 endingPage "36" @default.
• W4386014724 startingPage "25" @default.
• W4386014724 abstract "Background. A register is a critical component of the healthcare system. It consists of the informational part (number of patients, spectrum and severity of pathology, dynamics of each patient's condition, administration of specific drugs, and therapeutic effects) and an analytical part (treatment efficacy, planning individual and regional needs for specific drugs and therapeutic effects, development and evaluation of management protocols, etc.). In Russia, despite the existence of the National Federal Register, the number of parameters collected is limited; the Register lacks information about the disease course, clinical characteristics of patients, outcomes, and treatment costs. Thus, the existing shortcomings of the Federal Registry do not allow us to address the problems related to the management of the healthcare quality for patients with systemic juvenile idiopathic arthritis (sJIA). Objective. To analyze geographical, demographic, and clinical characteristics of sJIA patients receiving biologicals, time to diagnosis, and time to admission to a Federal Center according to the Federal Register of the Russian Federation. Patients and methods. We conducted a retrospective study that included 927 sJIA patients receiving biologicals according to the Federal Register. Results. The majority of patients resided in the Central and Volga Federal Districts (221 (23.8%) and 206 (22.3%), respectively). Half of the patients (n = 472 (50.8%)) had their disease onset before the age of 5 years. The following symptoms were registered at disease onset: fever (n = 908 (98%)), rash (n = 748 (80.7%)), enlarged liver and/or spleen (n = 562 (60.6%)), and serositis (n = 198 (21.4%)). A total of 708 children (76.4%) had active arthritis at the moment of disease onset, whereas 130 patients developed arthritis later. Median time to the development of articular syndrome was 24 months. Median time between the disease onset and the diagnosis was 2.93 months. Median time between the first symptoms and admission to a Federal Center was 6.7 months. Conclusion. Analysis of data from the Federal Register of sJIA patients receiving biologicals demonstrated that sJIA in the Russian population is characterized by an acute and early onset with severe extra-articular manifestations, and articular syndrome. The diagnosis was usually verified and the patients were hospitalized to specialized rheumatology departments of Federal Centers within 5 months. Key words: Federal Register, systemic juvenile idiopathic arthritis, biological, disease course" @default.
• W4386014724 created "2023-08-21" @default.
• W4386014724 creator A5015427127 @default.
• W4386014724 creator A5022064697 @default.
• W4386014724 creator A5022593892 @default.
• W4386014724 creator A5025474591 @default.
• W4386014724 creator A5026683952 @default.
• W4386014724 creator A5031700767 @default.
• W4386014724 creator A5036136317 @default.
• W4386014724 creator A5039724667 @default.
• W4386014724 creator A5043738203 @default.
• W4386014724 creator A5045075495 @default.
• W4386014724 creator A5045637489 @default.
• W4386014724 creator A5068157704 @default.
• W4386014724 creator A5069622085 @default.
• W4386014724 creator A5072324107 @default.
• W4386014724 creator A5075205315 @default.
• W4386014724 creator A5080617810 @default.
• W4386014724 creator A5083749603 @default.
• W4386014724 creator A5092667176 @default.
• W4386014724 creator A5092667177 @default.
• W4386014724 date "2023-01-01" @default.
• W4386014724 modified "2023-10-02" @default.
• W4386014724 title "Characteristics of systemic juvenile idiopathic arthritis in patients receiving biologicals: the results of the analysis of the Federal Russian Register" @default.
• W4386014724 doi "https://doi.org/10.20953/1817-7646-2023-3-25-36" @default.
• W4386014724 hasPublicationYear "2023" @default.
• W4386014724 type Work @default.
• W4386014724 citedByCount "0" @default.
• W4386014724 crossrefType "journal-article" @default.
• W4386014724 hasAuthorship W4386014724A5015427127 @default.
• W4386014724 hasAuthorship W4386014724A5022064697 @default.
• W4386014724 hasAuthorship W4386014724A5022593892 @default.
• W4386014724 hasAuthorship W4386014724A5025474591 @default.
• W4386014724 hasAuthorship W4386014724A5026683952 @default.
• W4386014724 hasAuthorship W4386014724A5031700767 @default.
• W4386014724 hasAuthorship W4386014724A5036136317 @default.
• W4386014724 hasAuthorship W4386014724A5039724667 @default.
• W4386014724 hasAuthorship W4386014724A5043738203 @default.
• W4386014724 hasAuthorship W4386014724A5045075495 @default.
• W4386014724 hasAuthorship W4386014724A5045637489 @default.
• W4386014724 hasAuthorship W4386014724A5068157704 @default.
• W4386014724 hasAuthorship W4386014724A5069622085 @default.
• W4386014724 hasAuthorship W4386014724A5072324107 @default.
• W4386014724 hasAuthorship W4386014724A5075205315 @default.
• W4386014724 hasAuthorship W4386014724A5080617810 @default.
• W4386014724 hasAuthorship W4386014724A5083749603 @default.
• W4386014724 hasAuthorship W4386014724A5092667176 @default.
• W4386014724 hasAuthorship W4386014724A5092667177 @default.
• W4386014724 hasConcept C115961737 @default.
• W4386014724 hasConcept C126322002 @default.
• W4386014724 hasConcept C138885662 @default.
• W4386014724 hasConcept C160735492 @default.
• W4386014724 hasConcept C162324750 @default.
• W4386014724 hasConcept C187212893 @default.
• W4386014724 hasConcept C2776820843 @default.
• W4386014724 hasConcept C2777077863 @default.
• W4386014724 hasConcept C2778570526 @default.
• W4386014724 hasConcept C2779134260 @default.
• W4386014724 hasConcept C2779235478 @default.
• W4386014724 hasConcept C41895202 @default.
• W4386014724 hasConcept C50522688 @default.
• W4386014724 hasConcept C512399662 @default.
• W4386014724 hasConcept C54355233 @default.
• W4386014724 hasConcept C71924100 @default.
• W4386014724 hasConcept C86803240 @default.
• W4386014724 hasConceptScore W4386014724C115961737 @default.
• W4386014724 hasConceptScore W4386014724C126322002 @default.
• W4386014724 hasConceptScore W4386014724C138885662 @default.
• W4386014724 hasConceptScore W4386014724C160735492 @default.
• W4386014724 hasConceptScore W4386014724C162324750 @default.
• W4386014724 hasConceptScore W4386014724C187212893 @default.
• W4386014724 hasConceptScore W4386014724C2776820843 @default.
• W4386014724 hasConceptScore W4386014724C2777077863 @default.
• W4386014724 hasConceptScore W4386014724C2778570526 @default.
• W4386014724 hasConceptScore W4386014724C2779134260 @default.
• W4386014724 hasConceptScore W4386014724C2779235478 @default.
• W4386014724 hasConceptScore W4386014724C41895202 @default.
• W4386014724 hasConceptScore W4386014724C50522688 @default.
• W4386014724 hasConceptScore W4386014724C512399662 @default.
• W4386014724 hasConceptScore W4386014724C54355233 @default.
• W4386014724 hasConceptScore W4386014724C71924100 @default.
• W4386014724 hasConceptScore W4386014724C86803240 @default.
• W4386014724 hasIssue "3" @default.
• W4386014724 hasLocation W43860147241 @default.
• W4386014724 hasOpenAccess W4386014724 @default.
• W4386014724 hasPrimaryLocation W43860147241 @default.
• W4386014724 hasRelatedWork W2020594595 @default.
• W4386014724 hasRelatedWork W2321215738 @default.
• W4386014724 hasRelatedWork W2346604664 @default.
• W4386014724 hasRelatedWork W2410368488 @default.
• W4386014724 hasRelatedWork W2518701141 @default.
• W4386014724 hasRelatedWork W2593488503 @default.
• W4386014724 hasRelatedWork W2746843 @default.
• W4386014724 hasRelatedWork W3009101301 @default.
• W4386014724 hasRelatedWork W3094834843 @default.
• W4386014724 hasRelatedWork W4232553582 @default.
• W4386014724 hasVolume "18" @default.
• W4386014724 isParatext "false" @default.

• next