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• W4386346908 abstract "HaemophiliaEarly View LETTER TO THE EDITOR A foundation to better care: Target product profile for haemophilia and Von Willebrand disease point-of-care diagnostics in low-resource settings Juliana Hagembe, Corresponding Author Juliana Hagembe [email protected] orcid.org/0000-0002-6078-9109 World Federation of Hemophilia, Montreal, QC, Canada Correspondence Juliana Hagembe and Alain Baumann, World Federation of Hemophilia, Montreal, QC, Canada. Email: [email protected] and [email protected]Search for more papers by this authorPierre Toulon, Pierre Toulon Service d'hématologie biologique, Hôpital Pasteur, CHU, Nice, FranceSearch for more papers by this authorAssad Haffar, Assad Haffar World Federation of Hemophilia, Montreal, QC, CanadaSearch for more papers by this authorAlain Baumann, Corresponding Author Alain Baumann [email protected] World Federation of Hemophilia, Montreal, QC, Canada Correspondence Juliana Hagembe and Alain Baumann, World Federation of Hemophilia, Montreal, QC, Canada. Email: [email protected] and [email protected]Search for more papers by this authorAnnette Bowyer, Annette Bowyer orcid.org/0000-0003-3425-5848 Department of Coagulation, Royal Hallamshire, Hospital, Sheffield, UKSearch for more papers by this authorSilmara Montalvao, Silmara Montalvao orcid.org/0000-0002-8920-3765 Laboratory Hemostasis and Thrombosis, Hematology Center of University of Campinas, Campinas, BrazilSearch for more papers by this authorEmna Gouider, Emna Gouider Aziza Othmana Hospital, Haemophilia Centre, Tunis Medical School, Tunis, TunisiaSearch for more papers by this authorCarlos de Brasi, Carlos de Brasi Academia Nacional de Medicina, Buenos Aires, ArgentinaSearch for more papers by this authorChen Dong, Chen Dong Hematopathology, Mayo Clinic, Minnesota, USASearch for more papers by this authorGlenn F. Pierce, Glenn F. Pierce orcid.org/0000-0002-3310-328X World Federation of Hemophilia, Montreal, QC, CanadaSearch for more papers by this author Juliana Hagembe, Corresponding Author Juliana Hagembe [email protected] orcid.org/0000-0002-6078-9109 World Federation of Hemophilia, Montreal, QC, Canada Correspondence Juliana Hagembe and Alain Baumann, World Federation of Hemophilia, Montreal, QC, Canada. Email: [email protected] and [email protected]Search for more papers by this authorPierre Toulon, Pierre Toulon Service d'hématologie biologique, Hôpital Pasteur, CHU, Nice, FranceSearch for more papers by this authorAssad Haffar, Assad Haffar World Federation of Hemophilia, Montreal, QC, CanadaSearch for more papers by this authorAlain Baumann, Corresponding Author Alain Baumann [email protected] World Federation of Hemophilia, Montreal, QC, Canada Correspondence Juliana Hagembe and Alain Baumann, World Federation of Hemophilia, Montreal, QC, Canada. Email: [email protected] and [email protected]Search for more papers by this authorAnnette Bowyer, Annette Bowyer orcid.org/0000-0003-3425-5848 Department of Coagulation, Royal Hallamshire, Hospital, Sheffield, UKSearch for more papers by this authorSilmara Montalvao, Silmara Montalvao orcid.org/0000-0002-8920-3765 Laboratory Hemostasis and Thrombosis, Hematology Center of University of Campinas, Campinas, BrazilSearch for more papers by this authorEmna Gouider, Emna Gouider Aziza Othmana Hospital, Haemophilia Centre, Tunis Medical School, Tunis, TunisiaSearch for more papers by this authorCarlos de Brasi, Carlos de Brasi Academia Nacional de Medicina, Buenos Aires, ArgentinaSearch for more papers by this authorChen Dong, Chen Dong Hematopathology, Mayo Clinic, Minnesota, USASearch for more papers by this authorGlenn F. Pierce, Glenn F. Pierce orcid.org/0000-0002-3310-328X World Federation of Hemophilia, Montreal, QC, CanadaSearch for more papers by this author First published: 01 September 2023 https://doi.org/10.1111/hae.14853Read the full textAboutPDF ToolsRequest permissionExport citationAdd to favoritesTrack citation ShareShare Give accessShare full text accessShare full-text accessPlease review our Terms and Conditions of Use and check box below to share full-text version of article.I have read and accept the Wiley Online Library Terms and Conditions of UseShareable LinkUse the link below to share a full-text version of this article with your friends and colleagues. Learn more.Copy URL Share a linkShare onEmailFacebookTwitterLinkedInRedditWechat REFERENCES 1Srivastava A, Santagostino E, Dougall A, et al. WFH guidelines for the management of hemophilia. Haemophilia. 2020; 26(Suppl 6): 1-158. 10.1111/hae.14046 2Connell NT, Flood VH, Brignardello-Petersen R, et al. ASH ISTH NHF WFH 2021 guidelines on the management of von Willebrand disease. Blood Adv. 2021; 5: 301-325. 10.1182/bloodadvances.2020003264 3 World Federation of Hemophilia Report on the Annual Global Survey 2021. 2022. https://www1.wfh.org/publications/files/pdf-2324.pdf [accessed 06 May 2023] 4Benson G, Auerswald G, Dolan G, et al. Diagnosis and care of patients with mild haemophilia: practical recommendations for clinical management. Blood Transfus. 2018; 16: 535-544. 10.2450/2017.0150-17 5Colonne CK, Reardon B, Curnow J, Favaloro EJ. Why is misdiagnosis of von Willebrand disease still prevalent and how can we overcome it? A focus on clinical considerations and recommendations. J Blood Med. 2021; 12: 755-768. 10.2147/JBM.S266791. eCollection 2021. 6Luppa PB, Müller C, Schlichtiger A, Schlebusch H. Point-of-care testing (POCT): current techniques and future perspectives. Trends Analyt Chem. 2011; 30: 887-898. 10.1016/j.trac.2011.01.019 7Lillicrap D. von Willebrand disease: advances in pathogenetic understanding, diagnosis, and therapy. Blood. 2013; 122: 3735-3740. doi:10.1182/blood-2013-06-498303 8Castaman G, Matino D. Hemophilia A and B: molecular and clinical similarities and differences. Haematologica. 2019; 104: 1702-1709. 10.3324/haematol.2019.221093 9Wiencek J, Nichols J. Issues in the practical implementation of POCT: overcoming challenges. Expert Rev Mol Diagn. 2016; 16: 415-422. 10.1586/14737159.2016.1141678 10Laliberté J, Coffin D, Haffar A, et al. Theory of change and strategic priorities of the world federation of haemophilia. Haemophilia. 2023; 29: 45-50. 10.1111/hae.14673 Early ViewOnline Version of Record before inclusion in an issue ReferencesRelatedInformation" @default.
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