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• W4386575082 abstract "ObjectiveTo contextualize the challenges that persons with congenital genitourinary conditions (CGC) may encounter in adulthood, we examined healthcare access, readiness for self-management, and healthcare utilization of adults with spina bifida (SB).MethodsThrough surveys distributed via social media, persons with SB were asked about access and barriers to care, readiness for self-management, and healthcare utilization (i.e., medical visits, missed visits, emergency room [ER] visits, hospital admissions) within the past year. Multivariable models were fitted to examine determinants of utilization.ResultsOf the 270 eligible respondents (mean age 39), 24.5% had not received care from a urologist in the past year. The odds of missing any medical visits were increased among those with more prior urologic surgeries (OR 1.35, 95%CI 1.05-1.78) and those with ER visits for urologic condition within the past year (OR 2.65, 95%CI 1.22-6.01). Those with private insurance had lower odds of having ER visits for urologic condition (OR 0.46, 95%CI 0.22-0.84). The odds of hospital admission related to urologic condition were increased among female (OR 2.35, 95%CI 1.01-6.64), those with more prior urologic surgeries (OR 1.18, 95%CI 1.09-1.51), and those with a urologist (OR 2.98, 95%CI 1.15-14.47).ConclusionA substantial proportion of adults with CGC lack routine urologic care. Considering the significant barriers to care and lapses in care, efforts to improve access and optimize healthcare services utilization for this population with high medical complexity are warranted." @default.
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• W4386575082 date "2023-09-01" @default.
• W4386575082 modified "2023-10-18" @default.
• W4386575082 title "Access and Utilization of Healthcare by Adults with Spina Bifida" @default.
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• W4386575082 doi "https://doi.org/10.1016/j.urology.2023.08.026" @default.
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