FRINK Linked Data Fragments server

Matches in SemOpenAlex for { <https://semopenalex.org/work/W4387302102> ?p ?o ?g. }

• W4387302102 endingPage "S168" @default.
• W4387302102 startingPage "S168" @default.
• W4387302102 abstract "In 2022, two clinical practice guidelines were published, one for allied health and nursing assessment and management of individuals with Duchenne muscular dystrophy (DMD) and the other, for the management of paediatric Charcot-Marie-Tooth disease (CMT). Over the last 10 years, there has been a proliferation of practice guidelines and standards of care for neuromuscular disorders. However, very little is known about adherence to and implementation of these guidelines by health professionals delivering neuromuscular care. To develop strategies for guideline implementation, we must first understand what evidence-to-practice gaps exist as well as the enablers and barriers to the uptake of guideline recommendations. This project will explore health professionals’ awareness of and adherence to the recently published DMD and CMT guidelines via an online survey administered on the REDCap platform (hosted by Murdoch Children's Research Institute). Health professionals (medical, nursing and allied health) who manage the clinical care and treatment of individuals with DMD and/or children and young people with CMT across Australia and New Zealand will be invited to participate in this once-only survey. The survey will be distributed to all Australian and New Zealand neuromuscular clinics and centres and through community health networks and professional associations. The overall aim is to determine current practice and implementation of clinical practice guidelines for neuromuscular disorders, specifically DMD and CMT and in particular relating to assessment and outcome measures (DMD) and exercise, physical activity and nutritional status (CMT). The findings from this project will provide preliminary evidence around awareness of guidelines, as well as enablers and barriers to compliance with guidelines. This information will be used to design tailored guideline implementation strategies and inform further research in the uptake of clinical practice guidelines. In 2022, two clinical practice guidelines were published, one for allied health and nursing assessment and management of individuals with Duchenne muscular dystrophy (DMD) and the other, for the management of paediatric Charcot-Marie-Tooth disease (CMT). Over the last 10 years, there has been a proliferation of practice guidelines and standards of care for neuromuscular disorders. However, very little is known about adherence to and implementation of these guidelines by health professionals delivering neuromuscular care. To develop strategies for guideline implementation, we must first understand what evidence-to-practice gaps exist as well as the enablers and barriers to the uptake of guideline recommendations. This project will explore health professionals’ awareness of and adherence to the recently published DMD and CMT guidelines via an online survey administered on the REDCap platform (hosted by Murdoch Children's Research Institute). Health professionals (medical, nursing and allied health) who manage the clinical care and treatment of individuals with DMD and/or children and young people with CMT across Australia and New Zealand will be invited to participate in this once-only survey. The survey will be distributed to all Australian and New Zealand neuromuscular clinics and centres and through community health networks and professional associations. The overall aim is to determine current practice and implementation of clinical practice guidelines for neuromuscular disorders, specifically DMD and CMT and in particular relating to assessment and outcome measures (DMD) and exercise, physical activity and nutritional status (CMT). The findings from this project will provide preliminary evidence around awareness of guidelines, as well as enablers and barriers to compliance with guidelines. This information will be used to design tailored guideline implementation strategies and inform further research in the uptake of clinical practice guidelines." @default.
• W4387302102 created "2023-10-04" @default.
• W4387302102 creator A5007237666 @default.
• W4387302102 creator A5014562442 @default.
• W4387302102 creator A5019440999 @default.
• W4387302102 creator A5034279767 @default.
• W4387302102 creator A5045912166 @default.
• W4387302102 creator A5072671416 @default.
• W4387302102 creator A5079367151 @default.
• W4387302102 date "2023-10-01" @default.
• W4387302102 modified "2023-10-07" @default.
• W4387302102 title "P95 Implementing clinical guidelines for neuromuscular disorders" @default.
• W4387302102 doi "https://doi.org/10.1016/j.nmd.2023.07.402" @default.
• W4387302102 hasPublicationYear "2023" @default.
• W4387302102 type Work @default.
• W4387302102 citedByCount "0" @default.
• W4387302102 crossrefType "journal-article" @default.
• W4387302102 hasAuthorship W4387302102A5007237666 @default.
• W4387302102 hasAuthorship W4387302102A5014562442 @default.
• W4387302102 hasAuthorship W4387302102A5019440999 @default.
• W4387302102 hasAuthorship W4387302102A5034279767 @default.
• W4387302102 hasAuthorship W4387302102A5045912166 @default.
• W4387302102 hasAuthorship W4387302102A5072671416 @default.
• W4387302102 hasAuthorship W4387302102A5079367151 @default.
• W4387302102 hasBestOaLocation W43873021021 @default.
• W4387302102 hasConcept C126322002 @default.
• W4387302102 hasConcept C142724271 @default.
• W4387302102 hasConcept C159110408 @default.
• W4387302102 hasConcept C160735492 @default.
• W4387302102 hasConcept C162324750 @default.
• W4387302102 hasConcept C2776356578 @default.
• W4387302102 hasConcept C2778943923 @default.
• W4387302102 hasConcept C2779134260 @default.
• W4387302102 hasConcept C2779974597 @default.
• W4387302102 hasConcept C2780182762 @default.
• W4387302102 hasConcept C3019806175 @default.
• W4387302102 hasConcept C50522688 @default.
• W4387302102 hasConcept C512399662 @default.
• W4387302102 hasConcept C71924100 @default.
• W4387302102 hasConceptScore W4387302102C126322002 @default.
• W4387302102 hasConceptScore W4387302102C142724271 @default.
• W4387302102 hasConceptScore W4387302102C159110408 @default.
• W4387302102 hasConceptScore W4387302102C160735492 @default.
• W4387302102 hasConceptScore W4387302102C162324750 @default.
• W4387302102 hasConceptScore W4387302102C2776356578 @default.
• W4387302102 hasConceptScore W4387302102C2778943923 @default.
• W4387302102 hasConceptScore W4387302102C2779134260 @default.
• W4387302102 hasConceptScore W4387302102C2779974597 @default.
• W4387302102 hasConceptScore W4387302102C2780182762 @default.
• W4387302102 hasConceptScore W4387302102C3019806175 @default.
• W4387302102 hasConceptScore W4387302102C50522688 @default.
• W4387302102 hasConceptScore W4387302102C512399662 @default.
• W4387302102 hasConceptScore W4387302102C71924100 @default.
• W4387302102 hasLocation W43873021021 @default.
• W4387302102 hasOpenAccess W4387302102 @default.
• W4387302102 hasPrimaryLocation W43873021021 @default.
• W4387302102 hasRelatedWork W1966085810 @default.
• W4387302102 hasRelatedWork W2119694297 @default.
• W4387302102 hasRelatedWork W2341671772 @default.
• W4387302102 hasRelatedWork W2401174271 @default.
• W4387302102 hasRelatedWork W2411047539 @default.
• W4387302102 hasRelatedWork W2560974522 @default.
• W4387302102 hasRelatedWork W3030086354 @default.
• W4387302102 hasRelatedWork W3110188073 @default.
• W4387302102 hasRelatedWork W4205341494 @default.
• W4387302102 hasRelatedWork W4245465950 @default.
• W4387302102 hasVolume "33" @default.
• W4387302102 isParatext "false" @default.
• W4387302102 isRetracted "false" @default.
• W4387302102 workType "article" @default.