Matches in SemOpenAlex for { <https://semopenalex.org/work/W4387395861> ?p ?o ?g. }
Showing items 1 to 87 of
87
with 100 items per page.
- W4387395861 abstract "Abstract Context: Patients with Cushing’s disease (CD) face challenges living with and receiving appropriate care for this rare, chronic condition. Even with successful treatment, many patients experience ongoing symptoms and impaired quality of life (QoL). Different perspectives and expectations between patients and healthcare providers (HCPs) may also impair well-being. Objective : To examine differences in perspectives on living with CD between patients and HCPs, and to compare care goals and unmet needs. Design: Memorial Sloan Kettering Pituitary Center established an annual pituitary symposium for pituitary patients and HCPs. Through anonymous pre-program surveys distributed at the 2020 and 2022 symposia, patients and HCPs answered questions related to their own sense, or perception of their patients’ sense, of hope, choice, and loneliness in the context of living with CD. Participants : From 655 participants over two educational events, 46 patients with CD and 116 HCPs were included. Median age of both groups was 51 years. 78.3% of the patients were female vs. 53.0% of the HCPs. Results: More patients than HCPs reported they had no choices in their treatment (21.7% vs. 0.9%, P<0.001). More patients reported feeling alone living with CD than HCPs’ perception of such (60.9% vs. 45.5%, P=0.08). The most common personal care goal concern for patients was ‘QoL/mental health,’ vs. ‘medical therapies/tumor control’ for HCPs. The most common CD unmet need reported by patients was ‘education/awareness’ vs. ‘medical therapies/tumor control’ for HCPs. Conclusions: CD patients experience long term symptoms and impaired QoL which may in part be due to a perception of lack of effective treatment options and little hope for improvement. Communicating experiences and care goals may improve long term outcomes for CD patients." @default.
- W4387395861 created "2023-10-07" @default.
- W4387395861 creator A5004562990 @default.
- W4387395861 creator A5011217365 @default.
- W4387395861 creator A5048330590 @default.
- W4387395861 creator A5058521219 @default.
- W4387395861 creator A5068889097 @default.
- W4387395861 creator A5081823120 @default.
- W4387395861 date "2023-10-06" @default.
- W4387395861 modified "2023-10-07" @default.
- W4387395861 title "Different Patient Versus Provider Perspectives on Living with Cushing’s Disease" @default.
- W4387395861 cites W1745903401 @default.
- W4387395861 cites W1979312063 @default.
- W4387395861 cites W1992926845 @default.
- W4387395861 cites W2021271765 @default.
- W4387395861 cites W2133418708 @default.
- W4387395861 cites W2148227677 @default.
- W4387395861 cites W2171877884 @default.
- W4387395861 cites W2602586351 @default.
- W4387395861 cites W2750649250 @default.
- W4387395861 cites W2897830294 @default.
- W4387395861 cites W2993476517 @default.
- W4387395861 cites W3042558499 @default.
- W4387395861 cites W3044765479 @default.
- W4387395861 cites W3102530992 @default.
- W4387395861 cites W3149816899 @default.
- W4387395861 cites W3170834535 @default.
- W4387395861 cites W4211186562 @default.
- W4387395861 cites W4225269193 @default.
- W4387395861 cites W4283713250 @default.
- W4387395861 cites W4366351146 @default.
- W4387395861 doi "https://doi.org/10.21203/rs.3.rs-3399335/v1" @default.
- W4387395861 hasPublicationYear "2023" @default.
- W4387395861 type Work @default.
- W4387395861 citedByCount "0" @default.
- W4387395861 crossrefType "posted-content" @default.
- W4387395861 hasAuthorship W4387395861A5004562990 @default.
- W4387395861 hasAuthorship W4387395861A5011217365 @default.
- W4387395861 hasAuthorship W4387395861A5048330590 @default.
- W4387395861 hasAuthorship W4387395861A5058521219 @default.
- W4387395861 hasAuthorship W4387395861A5068889097 @default.
- W4387395861 hasAuthorship W4387395861A5081823120 @default.
- W4387395861 hasBestOaLocation W43873958611 @default.
- W4387395861 hasConcept C118552586 @default.
- W4387395861 hasConcept C122980154 @default.
- W4387395861 hasConcept C126322002 @default.
- W4387395861 hasConcept C151730666 @default.
- W4387395861 hasConcept C15744967 @default.
- W4387395861 hasConcept C159110408 @default.
- W4387395861 hasConcept C2779134260 @default.
- W4387395861 hasConcept C2779343474 @default.
- W4387395861 hasConcept C2779951463 @default.
- W4387395861 hasConcept C2779998236 @default.
- W4387395861 hasConcept C512399662 @default.
- W4387395861 hasConcept C71924100 @default.
- W4387395861 hasConcept C77805123 @default.
- W4387395861 hasConcept C86803240 @default.
- W4387395861 hasConceptScore W4387395861C118552586 @default.
- W4387395861 hasConceptScore W4387395861C122980154 @default.
- W4387395861 hasConceptScore W4387395861C126322002 @default.
- W4387395861 hasConceptScore W4387395861C151730666 @default.
- W4387395861 hasConceptScore W4387395861C15744967 @default.
- W4387395861 hasConceptScore W4387395861C159110408 @default.
- W4387395861 hasConceptScore W4387395861C2779134260 @default.
- W4387395861 hasConceptScore W4387395861C2779343474 @default.
- W4387395861 hasConceptScore W4387395861C2779951463 @default.
- W4387395861 hasConceptScore W4387395861C2779998236 @default.
- W4387395861 hasConceptScore W4387395861C512399662 @default.
- W4387395861 hasConceptScore W4387395861C71924100 @default.
- W4387395861 hasConceptScore W4387395861C77805123 @default.
- W4387395861 hasConceptScore W4387395861C86803240 @default.
- W4387395861 hasLocation W43873958611 @default.
- W4387395861 hasOpenAccess W4387395861 @default.
- W4387395861 hasPrimaryLocation W43873958611 @default.
- W4387395861 hasRelatedWork W2141620662 @default.
- W4387395861 hasRelatedWork W2308413298 @default.
- W4387395861 hasRelatedWork W2317255260 @default.
- W4387395861 hasRelatedWork W2348377837 @default.
- W4387395861 hasRelatedWork W2609729044 @default.
- W4387395861 hasRelatedWork W2986111703 @default.
- W4387395861 hasRelatedWork W3033018046 @default.
- W4387395861 hasRelatedWork W4237770083 @default.
- W4387395861 hasRelatedWork W4312102834 @default.
- W4387395861 hasRelatedWork W4382699229 @default.
- W4387395861 isParatext "false" @default.
- W4387395861 isRetracted "false" @default.
- W4387395861 workType "article" @default.