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- W4387492854 abstract "ObjectiveTo identify and describe threats to informed decision making at key junctures of the Down syndrome determination experience.MethodsThirty-two narrative interviews were conducted with 42 participants (10 couples and 22 individuals). Participants relayed their story of receiving their child’s or a prospective child’s Down syndrome determination. Interviews were recorded, transcribed verbatim, and analyzed thematically.ResultsFive threats to informed decision making were identified: routinization of screening, screening for reassurance’s sake, equating an openness to screening with an openness to testing and termination, misunderstanding and miscommunicating about probability, and a lack of up-to-date, accurate, neutral information.ConclusionThe results contribute to an existing body of literature on the Down syndrome determination experience with a uniquely Canadian lens. The threats outline how well-intended counselling can ultimately undermine reproductive autonomy and informed decision making. With knowledge of how these seemingly harmless behaviours threaten informed decision making and reproductive autonomy, care providers can modify their counselling to lessen their impact." @default.
- W4387492854 created "2023-10-11" @default.
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- W4387492854 date "2023-10-01" @default.
- W4387492854 modified "2023-10-14" @default.
- W4387492854 title "“We’re Going To Book This For You”: Threats To Informed Decision Making In The Down Syndrome Determination Experience" @default.
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- W4387492854 doi "https://doi.org/10.1016/j.jogc.2023.102237" @default.
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