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- W45019750 abstract "Background: People with intellectual disability who have diabetes have few resources for themselves or their carers. There are multiple health issues present. The objective of the project was to describe the perceptions and experiences of living with diabetes as told by people with intellectual disability, their families and support staff. Methods: The project was a qualitative semi-structured interview study, conducted in southeast Queensland, Australia. There were 67 people involved - adults with intellectual disability (9), family of adults with intellectual disability (8), paid support staff of adults with intellectual disability (31), service co-ordinators (12), health professionals (6) and a worker in the sector (1). Focus group discussions were held with the participants. Their perceptions and experiences of living with and managing intellectual disability and diabetes were recorded and the themes of the discussions studied. Results: The findings revealed a number of shortcomings in relation to diabetes care in a population of people with intellectual disability and their families and support staff. There are higher than average support needs when diabetes is present. There is resentment at intrusion in their lives by diabetes from people with disability. There are feelings of fear and insecurity about diabetes in families and support staff. Families and support staff feel that generally they lack knowledge and also lack support from their organisations to manage both the intellectual disability and the diabetes. Conclusion: The general lack of confidence and knowledge about diabetes makes it difficult for people with intellectual disability and their families and support staff to function in an effective and satisfying way. There is a need for guidelines." @default.
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- W45019750 date "2005-01-01" @default.
- W45019750 modified "2023-09-26" @default.
- W45019750 title "Diabetes and Intellectual Disability: Perceptions from People with Disability and Their Supporters" @default.
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