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• W628333891 abstract "We explored patient-perceived role in decision-making related to active treatment and palliation among African Americans receiving lung cancer care through a county safety-net system.Drawing from a cohort of over 100 African Americans treated in a safety-net hospital, we invited a subsample of 13 patient-caregiver dyads to participate in a series of dyadic, ethnographic interviews conducted at the patients' homes. Over 40 h of transcripts were analyzed in an iterative process resulting in reported themes.Findings from ethnographic interviews demonstrated that healthcare communication with physicians is difficult for patients. While caregivers and patients describe a deep engagement in lung cancer care, they expressed a concurrent lack of understanding of their prognosis and outcomes of treatment. Dyads did not discuss their lung cancer experience in terms of decision-making; rather, most articulated their role as following physician guidance. Distinct lack of understanding about disease course, severity, and prognosis may constrain patient perception of the need for informed decision-making over the course of care.Dyadic interviews detailing safety-net patient experiences of lung cancer care raise important questions about how clinicians, as well as researchers, conceptualize processes of informed decision-making in vulnerable populations.Safety-net patients may not perceive their role as involving informed decision-making and further may lack understanding of disease course and individual prognosis. Safety-net patient dyads expressed high involvement in care and a desire for clarity; clinicians should be prepared to clearly communicate disease stage and prognosis." @default.
• W628333891 created "2016-06-24" @default.
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• W628333891 date "2015-06-16" @default.
• W628333891 modified "2023-09-23" @default.
• W628333891 title "Elucidating patient-perceived role in “decision-making” among African Americans receiving lung cancer care through a county safety-net system" @default.
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• W628333891 doi "https://doi.org/10.1007/s11764-015-0461-z" @default.
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