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- W83696323 abstract "The majority of children with Cerebral Palsy (CP) have feeding difficulties, which resultin chronic malnutrition and respiratory disease, reducing quality of life for caregiver andchild, and causing early child mortality. In well-resourced countries, high and low-techmedical interventions, ranging from gastrostomy tube-feeding to parent training, areavailable. In Bangladesh the former is not viable and the latter is both scarce and itseffectiveness not evaluated.The study aimed to evaluate the effectiveness of a training programme to improve thefeeding practices of carers of children with CP, observing the impact on level ofnutritional intake, risk of aspiration and distress caused to both during feeding.Thirty-seven caregivers and their children aged 1-11 with moderate-severe CP andfeeding difficulties were invited to a six-session training programme. Pre and postmeasures (quantitative and qualitative) were taken during home visits in addition togiving brief advice. A control phase was evaluated for 12 of the participant pairs whilstawaiting training.A minimum of four training sessions was successful in significantly improving children’snutritional intake and chest health, maximising independence in feeding, improving theexperience of mealtimes for both child and caregiver, decreasing caregiver stressregarding their child’s feeding difficulties and improving child levels of cooperation.Catch-up growth was observed in 26% of the children. A significant difference in theoutcomes between advice only and groups was observed.In conclusion, carers in Bangladesh, who have minimal formal education and live inabject poverty are able to change care-giving practices significantly after four trainingsessions, with positive consequences for both child and caregiver. Methods ofproviding affordable food supplementation need to be investigated and further stepsmust to be taken to lobby policy-makers in order to ensure that services have themotivation and capacity to address this area of need." @default.
- W83696323 created "2016-06-24" @default.
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- W83696323 date "2009-12-01" @default.
- W83696323 modified "2023-09-26" @default.
- W83696323 title "The management of feeding difficulties in children with cerebral palsy in Bangladesh" @default.
- W83696323 hasPublicationYear "2009" @default.
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