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- W978010311 abstract "INTRODUCTION Genetic disorders differ from other medical disorders in their impact on the famil y, because of the risk of recurrence. This impact is also culture dependent. In India, mothers usually get the blame for poorreproductive results, whether it is infertility or a handicap in the child. The problem gets compounded ifthe woman is found to be the carrier of a disease. We have previously reported 2 cases where women suffered discrimination from their husbands and inlaws because of a genetic disorder in their children.' We have since come across more such instances. This has prompted us to feel that genetic counselling in India requires to be reassessed, particularly in relation to the policy of disclosure of the carrier status of women. Because of arranged marriages, living with the in-laws in ajoint family set-up, illiteracy, social practices and the influence of family and friends on the personal lives of couples, women in India face considerable harassment from their husbands and in-laws, including separation and divorce. With more genetic centres coming up in the country and an acute shortage of professionally trained genetic counsellors, the situation may become serious. There is an urgent need for medical geneticists, disease specialists, sociologists and opinion makers to discuss this issue, share their experiences, assess the magnitude of the problem and evolve ethical guidelines for genetic counselling suitable for the Indian social environment. If necessary, appropriate amendments to the marital rights of women may be required to protect them from discrimination because of their genetic make-up. We hope that the three cases detailed below would initiate a discussion on this subject." @default.
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- W978010311 date "2001-03-13" @default.
- W978010311 modified "2023-09-23" @default.
- W978010311 title "Adverse effects of genetic counselling on women carriers of disease: the Indian perspective." @default.
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